CLL Society’s Tribune Ask and Tell Survey: Patient & Caregiver Feedback
This content was current as of the date it was released. In science and medicine, information is constantly changing and may become out-of-date as new data emerge.
September-October 2015
During September-October 2015, the CLL Society conducted a poll among readers of the inaugural issue of The CLL Tribune. The survey included questions assessing most important criteria when searching for information about CLL on the internet, the most valuable sections of the CLL Society website, feedback about the site, as well as demographic information. 152 complete responses were received:
- Average age – 65 (range 47-83)
- 36% Male, 64% Female
- 94% were patients; 6% were caregivers
- 60% of patient respondents had received some form of treatment
- 74% of respondents search on the Internet for information on CLL at least weekly
Respondents were asked to rank the most important criteria when searching for information about CLL on the internet on a scale from 1 to 10 where 1 = least important and 10=most important. Percentages of combined 8, 9 or 10 ratings revealed that the most important criteria were access to CLL experts (85%), sufficiently comprehensive and detailed (80%), unbiased and commercial-free (75%), information is reviewed by a physician (74%) and is frequently updated (74%). [Figure 1]
Figure 1. Most Important Criteria When Searching for information about CLL on the Internet
Respondents were asked to rate what sections of the CLL Society website are most valuable to them on a scale from 1 to 10 where 1 = least valuable and 10=most valuable. Percentages of combined 8, 9 or 10 ratings revealed that the most valuable were conference coverage and news (79% each), clinical trials (63%), and beyond the basics (61%). [Figure 2]
Figure 2. Most Valuable Sections of CLL Society Website (% of ratings 8, 9 or 10)
Originally published in The CLL Tribune Q4 2015.
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