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Happy New Year! We at the CLL Society are thrilled to be entering our second year as a non-profit patient organization serving the unmet needs of those affected by CLL and we look forward to another year of growth, as well as anticipating more great research data on new treatments for those of us with CLL. In this first week of 2016, take a look in our Beyond the Basics section to view my interview from iwCLL 2015 with Dr. John Pagel from the Swedish Hospital in Seattle as he discusses PD-1 and PDL-1 inhibitors for the treatment of CLL. You can see it here.
Two weeks ago, we published our second quarterly newsletter, The CLL Tribune. One of our goals within the newsletter is to address questions from our readers. Go to the Ask & Tell section to submit your own questions or comments, and take a look at the Ask The Doctor section to read Dr. Furman’s answers to questions submitted to our last issue.
Another goal for 2016 in addressing the unmet needs of those affected by CLL is to set up Patient/Caregiver support groups in areas that don’t currently have one available. We are currently identifying those geographic areas, so please consider answering a couple of questions in our Reader Poll to let us know if there is a need in your area.
For those of you in the Charlotte or Atlanta areas, we just became aware of 2 patient meetings coming up in February:
- Thursday, February 4th in Charlotte starting at 5:30 PM at the Hampton Inn & Suites Charlotte (View Charlotte flyer)
- Saturday, February 27th in Atlanta starting at 9:30 AM at the Sheraton Suites Galleria-Atlanta (View Atlanta flyer).
CLL patients will be sharing their personal stories, and local CLL experts will be providing a talk on the basics of CLL. You can call 844-482-6815 to register. Complimentary breakfast and parking are provided and you are welcome to bring a guest. I will be at both meetings with an exhibit table and will stay afterwards to meet with attendees who may be interested in participating in a support group in those areas. I look forward to meeting you there.
Happy New Year!
We are all in this together.
Volunteer Medical Director of the CLL Society