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This week in The Basics-Getting Started section of our website, we’ve posted a terrific lecture that we attended at the Lymphoma Research Foundation’s North American Educational Forum on Lymphoma held October 3-4, 2015 in New York City, NY. Dr. John Leonard, a top lymphoma researcher from Weill-Cornell, presents his fun take with the “Top 10 things Lymphoma Patients Need to Know”. It is obviously modeled after the long running gag on David Letterman’s Late Show. You can view it here and although it applies more generally to all lymphomas and not just our particular flavor (remember that chronic lymphocytic leukemia is both a lymphoma and leukemia), it is well worth reviewing to better understand our CLL.
LAST WEEK TO PARTICIPATE! As I prepare to speak at a symposium at the 2016 European Hematology Association Congress in Copenhagen in June, I am asking you to please consider completing our Reader Poll on how we patients and caregivers make decisions about therapy. It takes less than 5 minutes to complete. Many thanks to the 300 folks who have already done so! We’ll also present the aggregated results in a future issue of The CLL Tribune.
For those interested in getting a CLL support group going on the west side of the LA Basin, or in attending our Orange County group that meets at UCI, or the group that meets at City of Hope, please send us an email at support@CLLSociety.org and we will provide you with the necessary information.
From time to time, we will make you aware of meetings coming up for those of us affected by CLL. In May and June, they include:
May 7th at 7:30 AM in Philadelphia, PA: The Lymphoma Workshop: Understanding Lymphoma Basics and Current Treatment Options will be hosted by the Lymphoma Research Foundation. You can find out more information and register here. There is no charge to attend.
May 14th at 9:30 AM in New York City, NY: Living Well With CLL is an educational conference in Manhattan hosted by Patient Power. You can find out more information and register here. There is no charge to attend.
May 21st at 7:30 AM in Needham, MA: The Lymphoma Workshop: Understanding Lymphoma Basics and Current Treatment Options will be hosted by the Lymphoma Research Foundation. You can find out more information and register here. There is no charge to attend.
June 16th at 6 PM in Salt Lake City, UT: The Lymphoma Research Foundation will be hosting Updates on Chronic Lymphocytic Leukemia / Small Lymphocytic Lymphoma as part of their Ask the Doctor series. You can find out more information and register here. There is no charge to attend.
In the meantime….
We are all in this together.
Brian Koffman, MD
Volunteer Medical Director of the CLL Society