Sharon Millman, CEO of the Lymphoma Australia, discusses the mission of the 10-year-old patient founded nonprofit organization that is headquartered in Brisbane.
Their work includes the challenges of patient advocacy, education, awareness, and support across a country the size of the continental US, but with a population less than that of California.
Access to the latest and best treatments remains the biggest challenge for Australian patients. Patient input is critical in winning approval for new treatment.
The CLL Society had the privilege of putting on a patient education forum with Lymphoma Australia in Sydney the day before the XVI International Workshop on CLL. It was a resounding success for the CLL patients and caregivers who attended from across the continent and as far away as New Zealand.
Here is the link to the panel discussion from that meeting that included informative and differing opinions from Dr. Wiestner from the NIH, Dr. Wierda from MD Anderson Cancer Center, Dr. Trotman from the Univ. of Sydney and yours truly.
Without Sharon Millman and Lymphoma Australia, this patient education meeting would never have had happened.
Here is our conversation from Sydney, Australia.
Brian Koffman, MD 5-23-16