This week we have a couple of feel good stories that are instructive about how two folks with the diagnosis have chosen to live well with CLL and about their life after treatment.
On Thursday, U.S. Rep. Mark DeSaulnier from California announced that he was diagnosed with CLL in July and has completed his first round of treatment at Georgetown University. This public announcement is in stark contrast to many public figures who have kept quiet about their CLL during their life. Read more about his story here.
This week in the Living Well with CLL/Taking Charge section of our website, we’ve posted an article highlighting a Canadian CLL patient living in Nova Scotia, Derek Caine, (aka Little Derek) who despite his diagnosis, expanded his world to include music and composition. You can read more about his story and listen to his musical endeavors here.
THANK YOU AGAIN TO OUR READER POLL PARTICIPANTS! Data analysis is in progress and we look forward to sharing the results with you in a future issue of The CLL Tribune.
NEW – May 19th WEBCAST at 1:00 PM EDT: Hosted by the Leukemia and Lymphoma Society, this 90 minute webcast on CLL will cover the latest information on CLL. Dr. Susan O’Brien from University of California, Irvine is the speaker and she will do a super job. Find out more information and register here.
From time to time, we will make you aware of in-person meetings coming up for those of us affected by CLL. In May and June, they include:
May 14th at 9:30 AM in New York City, NY: Living Well With CLL is an educational conference in Manhattan hosted by Patient Power. You can find out more information and register here. There is no charge to attend.
May 21st at 7:30 AM in Needham, MA: The Lymphoma Workshop: Understanding Lymphoma Basics and Current Treatment Options will be hosted by the Lymphoma Research Foundation. You can find out more information and register here. There is no charge to attend.
June 16th at 6 PM in Salt Lake City, UT: The Lymphoma Research Foundation will be hosting Updates on Chronic Lymphocytic Leukemia / Small Lymphocytic Lymphoma as part of their Ask the Doctor series. You can find out more information and register here. There is no charge to attend.
In the meantime….
We are all in this together.
Brian Koffman, MD
Volunteer Medical Director of the CLL Society