July 11, 2017

Friends,

For those of you who have been enjoying an early summer vacation, welcome back and check out the latest issue of The CLL Tribune. Within this issue’s Reader Poll, we are offering caregivers the opportunity to provide feedback/suggestions/comments about how we might better provide support for them. You can access the survey here.

In our Conference Coverage section, read an interview with Mark Wildgust from Janssen about obviously, ibrutinib, but also the trials that will gather more information and the companies that are researching new compounds that may offer equal or different benefits compared to ibrutinib. You can read the article, watch the interview and read the transcript here.

In our Clinical Trials section, we’ve uploaded a poster from ASCO about a novel kinase inhibitor being studied with CLL patients who have been intolerant of other kinase inhibitors due to adverse events. You can read about it and access the link to the clinical trial and the poster here.

Prime Day is HERE! Shop today during the 2017 Amazon Prime Day and use the CLL Society Amazon Smile link to help support our efforts. Thank you and happy shopping!

CLL Patient Support Group Meetings Coming Up

• Tuesday, July 11^th at 7 PM in Orange, CA – The Orange County CLL Patient Support Group, sponsored by the CLL Society will be meeting. More information here.
• Saturday, July 15^th at 10 AM in Belmont, NC – The Charlotte-area CLL Patient Support Group sponsored by the CLL Society will be meeting. More information here.
• Saturday, July 15^th at 2 PM in Orlando, FL – The Orlando CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
• Saturday, July 15^th at 3 PM in Vienna, VA – The Washington DC area CLL Patient Support Group, sponsored by the CLL Society will be meeting. More information here.
• Sunday, July 16^th at 4 PM in San Francisco, CA – The San Francisco area CLL Patient Support Group, sponsored by the CLL Society, will be meeting. More information here.
• Monday, July 17^th at 7 PM in Duarte, CA – The City of Hope CLL Support Group, sponsored by the CLL Society, will be meeting. More information here.

ALSO – We are actively forming CLL-specific support groups in a number of cities around the country. Recently added: Central Massachusetts. To see if your city is one of them, click here and select the interest survey for your city. Not listed, but interested in starting one? Email us at support@cllsociety.org Thanks!

CLL Patient Education Meetings

• Wednesday, July 12^th at 1 PM ET – the Leukemia & Lymphoma Society is hosting a web/teleconference patient education program Living with Chronic Lymphocytic Leukemia. Danielle Brander from Duke University will be the featured speaker. Register and find out more information here.
• Saturday, July 22^nd from 9:00 AM to 3:00 PM in Atlanta, GA– The Leukemia and Lymphoma Society invites you to attend their Georgia Blood Cancer Conference, a free education event for blood cancer patients, family members, caregivers and healthcare professionals. There will be a breakout session focused on CLL. Pre-registration is required. Find out more information and register here.
• Monday, July 24^th from 6:00 – 7:30 PM at Ohio State University or live-stream – JamesCare for Life Presents Ask the Expert: The Treatment Landscape for Chronic Lymphocytic Leukemia: Part 2. John Byrd will provide information on upcoming therapies and discuss latest treatment recommendations for CLL. His presentation will be followed by a Q&A. This program will be available in-person or online via live stream. Find out more information and register here.
• Thursday, August 10th from 6:00 PM to 8:30 PM in Philadelphia, PA – The Lymphoma Research Foundation invites you to attend a FREE dinner meeting Ask the Doctor: Updates on Lymphoma and Treatment Options at the Sheraton Philadelphia Society Hill Hotel in Philadelphia, PA featuring Anthony Mato, MD from the Abramson Cancer Center and a member of the CLL Society Medical Advisory Board. Find out more information and register here.

In the meantime….

Stay strong.

We are all in this together.

Brian Koffman, MD