CMS approves CAR-T therapy payment, but with significant strings attached
Friends,
About one in ten patients may develop atrial fibrillation while being treated with ibrutinib for CLL and it is the most common cause of ibrutinib interruption or discontinuation. Dr. Anthony Mato from University of Pennsylvania, known for his real-world research with CLL patients, presented his findings at the iwCLL 2017 meeting in Manhattan last May. You can listen to our conversation or read the transcript here.
If you would like to read an article written by a patient about her experience when she developed atrial fibrillation while on ibrutinib and how it was resolved, click here. It was published in The CLL Tribune last year.
New to CLL? Wondering what all those abbreviations and acronyms mean that are sprinkled into conversations? Check out the CLL Abbreviations and Acronyms in the CLL Toolbox on our Home Page. You can access it here.
CLL Patient Support Group Meetings Coming Up
Tuesday, August 22nd at 7:00 PM in Berea, OH – the Northern Ohio CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Tuesday, August 22nd at 7:00 PM in Rochester, NY – the Rochester NY CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Saturday, August 26th at 10:00 AM in Belmont, NC – the Charlotte CLL Patient Support Group, sponsored by the CLL Society will be meeting. More information here.
Sunday, September 17th at 12 Noon in Albany, NY – The CLL Support Group of Albany (NY) will have their quarterly meeting. More information here.
ALSO – We are actively forming CLL-specific support groups in a number of cities across the country. There has been recent interest in forming support groups in the following cities: Dallas, TX, Syracuse, NY, Nashville, TN, Hartford, CT, Greensboro NC and Central Massachusetts. Complete the interest survey and let’s see if we can get one going! See what other cities are looking to form support groups by clicking here. Not listed, but interested in starting one? Email us at support@cllsociety.org Thanks!
CLL Patient Education Meetings
CLL Society Sponsored Meetings
Saturday, September 16th from 8:30 AM to 12:30 PM in Salt Lake City, UT – In partnership with the Huntsman Cancer Institute and the Leukemia & Lymphoma Society (LLS), the CLL Society invites you to attend our informational CLL Patient Education Forum. Featured speakers include Deborah Stephens, DO, John Sweetenham, MD, Katie Barker, RD, CD from Huntsman, Ben Fogel representing LLS, and Brian Koffman, MD and Terry Evans from the CLL Society. This event is free, but registration is required. Find out more information and register here.
Lymphoma Research Foundation Sponsored Meetings
LRF will be hosting Ask the Doctor: Updates on Lymphoma and Treatment Options meetings in Boston on September 6th at 6 PM, in Baltimore on September 13th at 6 PM and in Houston on September 14th at 6 PM. The meetings are free, but registration is required. Dinner will be provided to all registered attendees. Click the link for your city for more information and to register.
Lymphoma Canada Sponsored Meeting
Lymphoma Canada will be hosting their first National Conference on Lymphoma September 15-16 starting at 1:00 PM in Montreal, Canada. This event is free, but spaces are limited and registration is required. Find out more information and register here.
In the meantime….
Stay strong.
We are all in this together.
Brian Koffman, MD
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