April 9, 2019
Friends,
We know that the only curative therapy for CLL currently is an allogeneic stem cell transplant. For some patients, CLL cells remain in their blood after transplant. It was hoped that treatment with lenalidomide in this scenario would deliver the knock-out punch needed to wipe out the CLL. Unfortunately, a recent publication revealed that this is not the case. You can listen to my video or read the transcript here. Enjoy the last week of the summer holidays!
CLL Patient Support Group Meetings Coming Up
Tuesday, September 5th at 7:00 PM in Tucker, GA – the Tucker Family Support Group, sponsored by LLS will be meeting. More information here.
Wednesday, September 6th at 4:00 PM in San Diego, CA – the UCSD CLL Education and Support Group will be meeting. More information here.
Thursday, September 7th at 7:00 PM in New City, NY – The CLL Information & Support Group of Rockland County NY, sponsored by LLS will be meeting. More information here.
Saturday, September 9th at 2:00 PM in Orlando, FL – The Orlando CLL Patient Support Group, sponsored by the CLL Society, will be meeting. More information here.
Monday, September 11th at 6:00 PM in Indianapolis, IN – The CLL and Indolent Blood Cancers Support Group, sponsored by LLS, will be meeting. More information here.
Tuesday, September 12th at 7:00 PM in Orange, CA – The Orange County CLL Support Group, sponsored by the CLL Society, will be meeting. More information here.
Saturday, September 15th at 10:00 AM in Montreal, Canada – Montreal CLL Support Group – Groupe de soutien de la LLC de Montréal, co-sponsored by Lymphoma Canada and the CLL Society, will be meeting. More information here.
Sunday, September 17th at 12 Noon in Albany, NY – The CLL Support Group of Albany (NY) will have their quarterly meeting. More information here.
ALSO – We are actively forming CLL-specific support groups in a number of cities across the country. There has been recent interest in forming support groups in the following cities: Raleigh, NC, Cincinnati, OH, Dallas, TX, Syracuse, NY, Nashville, TN, Hartford, CT, Greensboro NC and Central Massachusetts. Complete the interest survey and let’s see if we can get one going! See what other cities are looking to form support groups by clicking here. Not listed, but interested in starting one? Email us at support@cllsociety.org Thanks!
CLL Patient Education Meetings
CLL Society Sponsored Meetings
Saturday, September 16th from 8:30 AM to 12:30 PM in Salt Lake City, UT – In partnership with the Huntsman Cancer Institute and the Leukemia & Lymphoma Society (LLS), the CLL Society invites you to attend our informational CLL Patient Education Forum. Featured speakers include Deborah Stephens, DO, John Sweetenham, MD, Katie Barker, RD, CD from Huntsman, Ben Fogel representing LLS, and Brian Koffman, MD and Terry Evans from the CLL Society. This event is free, but registration is required.
Find out more information and register here.
Lymphoma Research Foundation Sponsored Meetings
LRF will be hosting Ask the Doctor: Updates on Lymphoma and Treatment Options meetings in Boston on September 6th at 6 PM, in Baltimore on September 13th at 6 PM and in Houston on September 14th at 6 PM. The meetings are free, but registration is required. Dinner will be provided to all registered attendees. Click the link for your city for more information and to register.
Lymphoma Canada Sponsored Meeting
Lymphoma Canada will be hosting their first National Conference on Lymphoma September 15-16 starting at 1:00 PM in Montreal, Canada. This event is free, but spaces are limited and registration is required. Find out more information and register here.
In the meantime….
Stay strong.
We are all in this together.
Brian Koffman, MD
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