This week, as we are preparing to go to ASH to hear the latest data on CLL, we are posting an article that describes the deeper look that Juno shared after examining the data about what went wrong during the ROCKET trial and how they could improve going forward with a new CAR-T product You can access the full article and read my commentary here.
Share Your Voice! If you haven’t participated in our 2017 CLL Patient Survey, PLEASE consider doing so today. You can participate online or request a paper survey. Find out more here. If you’ve already participated, THANK YOU! Your participation will help us understand the experiences of CLL patients and how to best meet your needs.
Last week, we launched a new pilot program CLL Society Expert Access™. We frequently write and speak about how access to a CLL expert is critical to ensure receiving the best possible care and has proven to improve survival. The CLL Society is launching a new pilot program CLL Society Expert Access™ to provide free second opinions for CLL patients who have not had or who are not able to secure such access. Find out if you qualify for this pilot program here.
Our next CLL Patient Education Forums will be taking place after ASH 2017 we’ll be in Seattle, WA and Bethesda, MD on 12/16, then Boston, MA and Tampa, FL on 1/6/18, Duarte, CA on 1/13, Nashville, TN on 1/20, and Durham, NC on 1/27. You’ll hear the latest data about CLL and be able to ask questions of CLL Experts. See below for the full schedule, more information and to register.
CLL Support Groups Coming Up!
Sunday, December 3rd at 12 Noon in Latham, NY – The CLL Support Group of Albany (NY) will host their quarterly meeting. More information here.
Monday, December 4th at 6:00 PM in Indianapolis, IN – the CLL and Indolent Blood Cancers Support Group will be meeting. More information here.
Wednesday, December 6th at 4:00 PM in San Diego, CA – The UCSD CLL Education and Support Group will be meeting. More information here.
Thursday, December 7th at 7:00 PM in New City, NY – The CLL Information & Support Group of Rockland County NY, sponsored by LLS, will be meeting. More information here.
Saturday, December 9th at 2:00 PM in Orlando, FL – The Orlando CLL Support Group, sponsored by the CLL Society, will be meeting. More information here.
Saturday, December 9th at 2:00 PM in Media, PA – Philadelphia CLL Patient Support Group, sponsored by the CLL Society, will be meeting. More information here.
Sunday, December 10th at 3:00 PM in Atlanta, GA – The Atlanta Metro CLL Support Group, sponsored by the CLL Society, will be meeting. More information here.
Sunday, December 10th at 3:00 PM in New York City – The New York City CLL Support Group, sponsored by the CLL Society, will be meeting for the First Time. More information here.
CLL Patient Education Meetings
CLL Society Sponsored Meetings
SAVE THE DATE: The CLL Society will be hosting a series of CLL Patient Educational Forums. Mark your calendars! There is no charge to attend, but registration is required!
January 6th – Moffitt Cancer Center in Tampa, FL with Dr. Javier Pinella. SAVE THE DATE!
January 20th – Sarah Cannon Cancer Center in Nashville, TN with Dr. Ian Flinn. SAVE THE DATE!
Leukemia & Lymphoma Society Sponsored Meetings
Tuesday, December 5th from 6:00 PM – 9:00 PM in Phoenix, AZ – LLS invites you to attend Living Well with CLL: Diagnosis, Treatments and Support being held at the Camby Hotel in Phoenix, AZ. Dr. Jose Leis from the Mayo Clinic will be presenting. This event is free but registration is required. Dinner will be provided to registered attendees. Find out more information and register here.
Lymphoma Research Foundation Sponsored Meetings
LRF will be hosting Ask the Doctor: Updates on Lymphoma and Treatment Options meetings in Richmond, VA on November 30th at 6 PM and in Omaha, NE on December 5th at 6 PM. The meetings are free, but registration is required. Dinner will be provided to all registered attendees.
Cancer Care Sponsored Educational Webcast
Cancer Care invites you to attend a webcast/phone conference Update on Chronic Lymphocytic Leukemia (CLL) on Thursday, December 14th from 1:30 – 2:30 PM ET featuring John Pagel, MD, PhD from Swedish Cancer Institute, Jennifer Brown, MD, PhD from Dana Farber Cancer Institute, Brian Koffman, MD from the CLL Society, and Caroline Edlund, MSW from Cancer Care. Find out more information and register here.
In the meantime….
We are all in this together.
Brian Koffman, MD