April 9, 2019
Friends,
WOW! Two spectacular CLL Educational Forums in Bethesda, MD at NIH and at Swedish Cancer Institute in Seattle, WA this past weekend. It was great to meet everyone and we are so thankful to the faculty who gave their time to present the latest data from ASH and to answer your questions, as well as the patients and caregivers who helped out with registration and logistics onsite. Many more to come after the holidays (see below)! Come see us!
This week we are posting an interview we did with Dr. Matthew Davids at ASH 2017 where we discussed the combination of ibrutinib with FCR in the frontline setting and the amazing depth of response. You can read my commentary, view our interview or read the transcript here.
LAST CALL! We’re trying to wrap up our 2017 CLL Patient Survey so if you have the time and have not yet participated, do so today! We are thankful to all who have shared their stories!
There is published data that CLL patients who see a CLL Expert live longer than those that don’t. WE STILL HAVE A FEW MORE SPOTS for our CLL Society Expert Access™ Pilot program. Sign up today if you’re looking for a free second opinion!
CLL Support Groups
Tuesday, December 19th at 7:00 PM in Berea, OH – The Northeast Ohio CLL Patient Support Group, sponsored by the CLL Society, will be meeting. More information here.
We have a new Interest Survey for Houston, TX. If you live in that area and are interested in being part of a new support group, fill out the survey.
CLL Educational Meetings
CLL Society Sponsored Meetings
The CLL Society is hosting a series of CLL Patient Educational Forums. Find out if there is one near you! There is no charge to attend, but registration is required!
January 6th – Dana Farber Cancer Institute in Boston, MA with Dr. Matthew Davids. More information here. Register here.
January 6th – Moffitt Cancer Center in Tampa, FL with Dr. Javier Pinella. More information here. Register here.
January 13th – City of Hope in Duarte, CA with Drs. Steven Rosen and Tanya Siddiqi. More information here. Register here.
January 20th – Sarah Cannon Cancer Center and Tennessee Oncology in Nashville, TN with Dr. Ian Flinn. More information here. Register here.
January 27th – Duke Cancer Institute in Raleigh, NC with Dr. Danielle Brander. More information here. Register here.
Leukemia & Lymphoma Society Sponsored Meetings
Saturday, January 27th from 9:00 AM – 2:00 PM in San Francisco, CA
The Leukemia & Lymphoma Society (LLS) invites you to attend the Northern California Blood Cancer Conference being held at the Hyatt Regency-San Francisco. This event is free but registration is required. Find out more information and register here.
Lymphoma Research Foundation Sponsored Meetings
Thursday, January 11th from 6:00 PM to 8:30 PM in New Haven, CT
The Lymphoma Research Foundation invites you to attend a FREE dinner meeting Ask the Doctor: Updates on Lymphoma and Treatment Options at Courtyard New Haven at Yale in New Haven, CT featuring Francine Foss, MD from Yale Cancer Center. Find out more information and register here.
The Ohio State University and CLL Society Sponsored Meeting
Monday, January 29th from 6:00 – 7:30 PM in Columbus, OH or Streaming
The James Cancer Hospital and Solove Research Institute at Ohio State University and the CLL Society invite you to attend Being Your Own Advocate: A CLL Patient’s Perspective being held in the Wasserstrom Family Conference Room L035. Dr. Brian Koffman will share what he has learned from his journey as a doctor turned CLL patient/cancer survivor and founder of the nonprofit CLL Society. He will discuss how to become your own advocate, and why that is important to your care. More information here. Register here.
In the meantime….
Stay strong.
We are all in this together.
Brian Koffman, MD
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