Happy New Year!
Last week we published the latest issue of The CLL Tribune. We’re so grateful to the patients, caregivers and physicians who share their experience and expertise to enrich our CLL Society community. If you would like to share your story, or have ideas for future articles, please reach out to us.
We’d also request that you take 2 minutes to answer our 4 question Reader Poll in the Ask &Tell section to help us understand your needs to understand CLL better and how the CLL Society can help you. You can access the survey here.
I’ll be in Boston this Saturday for the CLL Patient Educational Forum we’re sponsoring at Dana Farber Cancer Institute with Dr. Matthew Davids. Terry Evans, our Director of the CLL Support and Education Network will be in Tampa at the Moffitt Cancer Institute with Dr. Pinilla and his team. We look forward to seeing you there! (Details below). Join us at City of Hope on 1/13, in Nashville on 1/20 and at Duke on 1/27!
Did you participate in the 2017 Patient Survey? If so, you were in the company of over 1,100 others who did. Thank you for sharing your CLL Journey with us. The survey is now closed. We’ll be aggregating all the data and developing abstracts for submission to hematology conferences and publications. Now that the survey is closed, the gift codes will be sent out to those who were eligible. They should be received via email within the next 4 weeks.
Please enjoy the articles and interviews from the Q4 2017 issue of The CLL Tribune:
- Read or watch the interview with Dr. Brian Koffman and Dr. John Pagel as they discuss the research that examined the real-world experience of CLL patients being treated with venetoclax in Conference Coverage.
- Read answers to reader questions by Dr. Rick Furman in Ask the Doctor
- In The Basics Section, Tom Henry, a CLL patient and registered pharmacist provides a comprehensive guide to venetoclax, how it works, known drug or food interaction, potential side effects and how best to manage them
- In Beyond the Basics, Dr. Chau Huynh reviews the types of imaging used in CLL, as well as the radiation dosage for each type of imaging.
- Learn new facts about CLL in the Did You Know section
- In Ask & Tell, complete the short survey to tell us your thoughts about what we’re doing well, what is missing from the CLL Society website and how we can best meet your needs in 2018.
- In Living Well with CLL section, you can read about:
CLL Patient Support Group Meetings Coming Up
Wednesday, January 3rd at 4:00 PM in San Diego, CA – The UCSD CLL Education and Support Group will be meeting and Dr. Januario Castro will be talking about CAR-T cell therapy. More information here.
Thursday, January 4th at 7:00 PM in New City, NY – The CLL Information & Support Group of Rockland County NY, sponsored by LLS, will be meeting. More information here.
Monday, January 8th at 6:00 PM in Indianapolis, IN – The CLL and Indolent Blood Cancers Support Group will be meeting. More information here.
Tuesday, January 9th at 7:00 PM in Orange, CA – The Orange County CLL Support Group, sponsored by the CLL Society, will be meeting. More information here.
Thursday, January 11th at 7:00 PM in Golden Valley, MN – The Twin Cities CLL Support Group, sponsored by the CLL Society, will be meeting. More information here.
Potential New Support Groups – Check out the areas where other CLL Patients have requested that new support groups be started. Complete the interest survey and let’s see if we can get one going! See what other cities are looking to form support groups by clicking here. Not listed, but interested in starting one? Email us at email@example.com Thanks!
CLL Patient Education Meetings
CLL Society Sponsored Meetings
The CLL Society will be hosting a series of Post-ASH CLL Patient Educational Forums. There is no charge to attend, but registration is required!
Leukemia & Lymphoma Society Sponsored Meetings
Saturday, January 27th from 9:00 AM – 2:00 PM in San Francisco, CA
The Leukemia & Lymphoma Society (LLS) invites you to attend the Northern California Blood Cancer Conference being held at the Hyatt Regency-San Francisco. This event is free but registration is required. Find out more information and register here.
Lymphoma Research Foundation Sponsored Meetings
Thursday, January 11th from 6:00 PM to 8:30 PM in New Haven, CT
The Lymphoma Research Foundation invites you to attend a FREE dinner meeting Ask the Doctor: Updates on Lymphoma and Treatment Options at Courtyard New Haven at Yale in New Haven, CT featuring Francine Foss, MD from Yale Cancer Center. Find out more information and register here.
The Ohio State University and CLL Society Sponsored Meeting
Monday, January 29th from 6:00 – 7:30 PM in Columbus, OH or Streaming
The James Cancer Hospital and Solove Research Institute at Ohio State University and the CLL Society invite you to attend Being Your Own Advocate: A CLL Patient’s Perspective being held in the Wasserstrom Family Conference Room L035. Dr. Brian Koffman will share what he has learned from his journey as a doctor turned CLL patient/cancer survivor and founder of the nonprofit CLL Society. He will discuss how to become your own advocate, and why that is important to your care. More information here. Register here.
In the meantime….
We are all in this together.
Brian Koffman, MD