MARCH 20, 2018
This was supposed to be a rest day and it sure was.
Woke up with no chemo in the plans feeling not too bad after my three days of fludarabine and cyclophosphamide to get rid of my natural T cells to make room for the re-engineered T cell.
We planned to go for a “forest bath” on the Bloedel Reserve on Bainbridge Island while my blood counts were still OK enough for me to travel (YEAH!), but as the morning wore on I got sicker and sicker and even a 35-minute ferry ride back and forth seemed too much of a challenge for my queasy stomach and unpredictable gut.
Instead, I slept all day, ate little other than some ginger tea with honey, and then late in the evening, Patty again forced me to get out of the “house”, and walk by the water near our Residence Inn and window shop the million dollar yachts and old historic wooden boats including the only surviving lighthouse boat in Washington State. Patty has her eye on one yatch for 2 million with 3 staterooms and one for the crew. But first she has to win the lottery.
Unfortunately, I felt worse after walking, but when back at the hotel I took ½ of a 0.5 lorazepam and while that made me even more sleepy, it allowed me to stomach some much needed soup and cooked asparagus.
I am a total wimp when it comes to sedating drugs so I try to avoid them, but I also have to eat. I don’t like the way downers make me feel. I so define myself by my intellectual agility and I don’t want to lose any spring in my game. However, nausea is hardly conductive to deep analytic thought, so I made my choice.
I wrote this with my eyes droopy from the touch of a benzodiazepine in my system. You tell me if it’s coherent.
But first I am going to sleep.
Stay strong- I keep saying that tom y sleepy nauseated self.
We are all in this together.