CLL Society’s Tribune Ask and Tell Survey: Patient & Caregiver Feedback
This content was current as of the date it was released. In science and medicine, information is constantly changing and may become out-of-date as new data emerge.
The CLL Tribune Q1 2018 Reader Poll Results and ASCO and EHA Poster Presentations
In the Q1 2018 issue of The CLL Tribune, we asked our readers about the value of printed educational materials, when and what they received and suggestions for topics.
Eighty-six readers responded and 42% reported that they received printed materials when they saw their healthcare providers. Twenty-two percent said they received printed materials either every visit or most visits, but 59% said it happened only occasionally or rarely.
The most common format was a few pages stapled together, (61%), followed by a booklet (50%). Materials created by their specific clinic or healthcare office were most frequently reported (56%), followed by those provided by the Leukemia and Lymphoma Society (42%).
The CLL Society plans to create a CLL Toolkit, a binder that physicians and nurses can use to reinforce the education they provide to CLL patients. Each educational topic will be presented on a double-sided sheet of paper. The Toolkit will be a binder containing 25 topics and each folder within the binder will contain 25 copies of each topic.
These binders will be free-of-charge for physicians/nurses who treat patients with CLL.
Patient Research Presented at ASCO and EHA
In the Fall of 2017, the CLL Society fielded a lengthy survey of US-based CLL patients. Some of the results from the 1147 respondents were developed into abstracts that were submitted for consideration to the American Society of Clinical Oncology (ASCO) and the European Hematology Association. Both were accepted for poster presentations at these important conferences. Betsy Dennison, MS, RN, FNP traveled to Chicago to present the ASCO poster and Brian Koffman, MD traveled to Stockholm, Sweden to present the EHA poster. The responses to the research was overwhelmingly positive and we are now in the process of developing abstracts for consideration at the upcoming 2018 American Society of Hematology (ASH) annual meeting, which will take place in San Diego in December. You can see photos below, as well as download the ASCO and EHA posters.
Originally published in The CLL Tribune Q2 2018.
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