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Hello, Friends and Supporters of the CLL Society.
At every opportunity, we strive to bring you the latest announcements for upcoming Support Group meetings, special events, and other learning resources. Here’s what’s coming up!
This week we are posting Dr. Koffman’s ASH 2017 interview with Dr. Thomas Kipps from the Moore Cancer Center at UCSD in San Diego, CA. They discuss the exciting new antibody, cirmtuzumab that targets ROR1. You can read the summary and view the interview here.
The nonprofit CLL Society is working with a research partner to find people in the US living with chronic lymphocytic leukemia (CLL) who will be willing to take part in phone based conversations related to their disease. Those taking part will be paid for their time. Click Here to Learn more.
CLL Society Fundraiser
Catalina Swim for Leukemia – It’s now less than 2 weeks until the 22-mile “big swim” that Stan Kurtz will make on August 4th from Catalina to Palos Verdes, generously donating all proceeds from his GoFundMe campaign to the CLL Society. If you haven’t already, you can read more about his amazing story here.
Upcoming Special events:
Lymphoma Research Foundation Sponsored Meetings
Thursday, August 9th from 6:00 PM to 8:30 PM in Hasbrouck Heights, NJ
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Hilton Hasbrouck Heights featuring Lori Ann Leslie, MD from the John Theurer Cancer Center at Hackensack University Hospital. Find out more information and register here.
Prime Education Sponsored Webinar
Join Dr. John Byrd and Dr. Brian Koffman for Managing Toxicities of Novel Therapies and Coordinating Care for CLL/SLL and FL Patients
Wednesday, August 15, 2018 at 2:00 PM Eastern / 11:00 AM Pacific
Patients (and Caregivers): Would you know the signs of toxicity from Novel Therapies for CLL/SLL and FL if you saw them? Are you clear about toxicity prevention and management strategies? Share your experiences and get the information you need to knowledgeably discuss healthcare decisions with your treatment team. You will have the opportunity to ask our experts questions and hear their recommendations for managing toxicities and addressing other challenges. Register here.
Leukemia & Lymphoma Society Sponsored Meetings
Wednesday, August 22nd from 6:00 PM to 9:00 PM in Teaneck, NJ
LLS invites you to attend Living Well with CLL: Diagnosis, Treatment and Support being held at the Teaneck Marriott at Glenpoint, featuring Anthony Mato, MD from Memorial Sloan Kettering, Alan Skarbnik, MD from John Theurer Cancer Center at Hackensack University Hospital and Kathleen Calivio, BSN from Memorial Sloan Kettering. Dinner will be provided to registered attendees. His event is free but registration is required. Find out more information and Register here.
CLL-Specific Support Group Meetings Coming Up!
Tuesday, July 24th at 7:00 PM in Berea, OH – The Northeast Ohio CLL Patient Support Group, sponsored by the CLL Society will be meeting. More information here.
Wednesday, July 25th at 7:00 PM in Rochester, NY – The Rochester NY CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Saturday, July 28th at 10:00 AM in Nashville, TN – The Nashville CLL Patient Support Group, sponsored by the CLL Society will be meeting. More information here.
Saturday, July 28th at 1:00 PM in Newton Lower Falls, MA – The Boston CLL Patient Support Group, sponsored by the CLL Society will be meeting. More information here.
Wednesday, August 1st at 4:00 PM in La Jolla, CA – The UCSD CLL Education and Support Group will be meeting. More information here.
Thursday, August 2nd at 7:00 PM in New City, NY – The CLL Information & Support Group of Rockland County NY, sponsored by the Leukemia & Lymphoma Society will be meeting. More information here.
A special note for The Seattle/Olympic Peninsula CLL Support Group: our meeting on Saturday, August 11th has been canceled. Our regularly scheduled meetings will resume in September.
A special note for The Washington DC-area Support Group: our meeting on Saturday, August 18th has been canceled. Our regularly scheduled meetings will resume in September.
That’s it for now.
We are all in this together!
Patricia Koffman/ Co-Founder and Executive Director
CLL Society Inc.
P.O. Box 1390
Claremont, CA 91711
July 24, 2018