August 21, 2018

Hello, Friends and Supporters of the CLL Society.

This week Dr. Koffman interviews Dr. Bill Wierda on the topic of CLL patients that progress on ibrutinib. This audio-only interview touches on how there are still significant unmet needs despite the amazing advances in CLL care. Read and listen to the article here.

Coming Soon!

As we are preparing for the next issue of the CLL Tribune (to be released at the end of September), consider sharing your personal CLL journey by submitting your story to: support@cllsociety.org or by asking a question under Ask the Pharmacist or Ask the Laboratory Scientist.

CLL/SLL patients in the US can advance research NOW with just a few clicks!

The CLL Society is pleased to announce its collaboration with the Leukemia & Lymphoma Society (LLS) on the LLS National Patient Registry project (LLS-NPR). We are excited to have this unique opportunity to be at the forefront among blood cancer disease organizations in the United States.

To learn more, click these links to read our press release and to watch a 2-minute video that explains the project further.

An Incredible Journey

If you haven’t yet done so, click here to learn more about Stan Kurtz’s amazing journey as he trained and swam the Catalina Channel – raising much needed funds for the CLL Society. And if you’d like to make a donation it’s not too late! Stan’s GoFundMe page is still open.

Upcoming Special events:

Leukemia & Lymphoma Society Sponsored Meetings 

Wednesday, August 22nd from 6:00 PM to 9:00 PM in Teaneck, NJ

LLS invites you to attend Living Well with CLL: Diagnosis, Treatment and Support being held at the Teaneck Marriott at Glenpoint, featuring Anthony Mato, MD from Memorial Sloan Kettering, Alan Skarbnik, MD from John Theurer Cancer Center at Hackensack University Hospital and Kathleen Calivio, BSN from Memorial Sloan Kettering. Dinner will be provided to registered attendees. His event is free but registration is required. Find out more information and Register here.

Lymphoma Research Foundation Sponsored Meetings 

Thursday, September 6 from 6:00 PM to 8:30 PM in Pittsburgh, PA

The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Pittsburgh Marriott City Center featuring Alison R. Sehgal, MD from the Department of Oncology and Hematology at University of Pittsburgh Medical Center. Find out more information and register here.

Thursday, September 6 from 6:00 PM to 8:30 PM in Denver, CO

The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Doubletree by Hilton Denver featuring Manali Kamdar, MD and Bradley Haverkos, MD, MPH from the University of Colorado School of Medicine. Find out more information and register here.

Prime Education Sponsored Webinar 

Monday, September 17, 2018 at 2:00 PM Eastern / 11:00 AM Pacific
Real-World Patient Experiences & Evidence-based Treatment Strategies in CLL/SLL and FL Patients. A webinar featuring Dr. Danielle Brander and Dr. Larry Saltzman. Find out more information and register here.

CLL-Specific Support Group Meetings Coming Up! 

Tuesday, August 21st at 7:00 PM in Chicago, IL – The Chicago CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Wednesday, August 22nd at 7:00 PM in Rochester, NY – The Rochester NY CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Saturday, August 25th at 10:00 AM in Nashville, TN – The Nashville CLL Patient Support Group, sponsored by the CLL Society will be meeting. More information here.

Saturday, August 25th at 10:30 AM in Tampa, FL – The Central Florida CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Saturday, August 25th at 1:00 PM in Newton Lower Falls, MA – The Boston CLL Patient Support Group, sponsored by the CLL Society will be meeting. More information here.

Sunday, August 26th at 3:00 PM in Dallas, TX – The DFW CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Tuesday, August 28th at 7:00 PM in Berea, OH – The Northeast Ohio CLL Patient Support Group, sponsored by the CLL Society will be meeting. More information here.

That’s it for now.

Stay strong.

We are all in this together!

Patty

Patricia Koffman/ Co-Founder and Executive Director
CLL Society Inc.
P.O. Box 1390
Claremont, CA 91711
August 21, 2018