August 28, 2018

This content was current as of the date it was released. In science and medicine, information is constantly changing and may become out-of-date as new data emerge.

Hello, Friends and Supporters of the CLL Society.

In lieu of more research reporting, this week Brian posts on his CAR-T blog and the grief and joy in the CLL world. Also more on swimming. You can access his blog post here.

Ask the Pharmacist and Laboratory Scientist

Tom Henry, chief Pharmacist at Moffitt and a CLL patient himself, and Susan LeClair, teacher and laboratory scientist, retired chancellor professor from the Department of Medical Laboratory Science at the University of Massachusetts are available to answers your questions on your meds and your lab tests. This is a great opportunity. Your question may be featured in our upcoming issue of The CLL Tribune Newsletter. Ask your question here: Ask the Pharmacist or Ask the Laboratory Scientist.

In the news…

Ibrutinib is now approved for Waldenström’s Macroglobulinemia, a sister cancer to CLL. Read more here.

Expert Access

Don’t have access to a CLL expert? Need a second opinion? We are pleased to offer this free resource for patients who need access to a CLL expert through a HIPAA compliant online video consultation.

CLL/SLL patients in the US can advance research NOW with just a few clicks!

The CLL Society is pleased to announce its collaboration with the Leukemia & Lymphoma Society (LLS) on the LLS National Patient Registry project (LLS-NPR). We are excited to have this unique opportunity to be at the forefront among blood cancer disease organizations in the United States.

To learn more, click these links to read our press release and to watch a 2-minute video that explains the project further

Upcoming Special events:

Lymphoma Research Foundation Sponsored Meetings 

Thursday, September 6 from 6:00 PM to 8:30 PM in Pittsburgh, PA

The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Pittsburgh Marriott City Center featuring Alison R. Sehgal, MD from the Department of Oncology and Hematology at University of Pittsburgh Medical Center. Find out more information and register here.

Thursday, September 6 from 6:00 PM to 8:30 PM in Denver, CO

The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Doubletree by Hilton Denver featuring Manali Kamdar, MD and Bradley Haverkos, MD, MPH from the University of Colorado School of Medicine. Find out more information and register here.

Prime Education Sponsored Webinar 

Monday, September 17, 2018 at 2:00 PM Eastern / 11:00 AM Pacific

Real-World Patient Experiences & Evidence-based Treatment Strategies in CLL/SLL and FL Patients. A webinar featuring Dr. Danielle Brander and Dr. Larry Saltzman. Find out more information and register here.

CLL-Specific Support Group Meetings Coming Up! 

Tuesday, August 28th at 7:00 PM in Berea, OH – The Northeast Ohio CLL Patient Support Group, sponsored by the CLL Society will be meeting. More information here.

Monday, September 3rd at 6:00 PM in Indianapolis, IN  – The CLL and Indolent Blood Cancers Support Group will be meeting. More information here.

Tuesday, September 4th at 7:00 PM in Tucker, GA – The Tucker Family Support Group, sponsored by LLS will be meeting. More information here.

Thursday, September 6 at 7:00 PM in New City, NY – The CLL Information & Support Group of Rockland County NY, sponsored by the Leukemia & Lymphoma Society will be meeting. More information here.

Saturday, September 8th at 10:00 AM in Webster, TX – The Houston-area CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Saturday, September 8th at 12:30 PM in North Worcester, MA – The Central Massachusetts CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Saturday, September 8th at 1:00 PM in Gig Harbor, WA – The Seattle/Olympic Peninsula CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Saturday, September 8th at 2:00 PM in Orlando, FL – The Orlando CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Saturday, September 8th at 2:00 PM in Media, PA – The Philadelphia CLL Support Group, sponsored by the CLL Society, will be meeting. More information here.

Sunday, September 9th at 3:00 PM in Atlanta, GA – The Atlanta Metro CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Sunday, September 9th at 3:00 PM in New York City – The New York City CLL Support Group, sponsored by the CLL Society, will be meeting. More information here.

That’s it for now.

Stay strong.

We are all in this together!

Patty

Patricia Koffman/ Co-Founder and Executive Director
CLL Society Inc.
P.O. Box 1390
Claremont, CA 91711

August 28, 2018