August 21, 2018
| Hello, Friends and Supporters of the CLL Society.
CLL/SLL patients in the US can advance research NOW with just a few clicks! The CLL Society is pleased to announce its collaboration with the Leukemia & Lymphoma Society (LLS) on the LLS National Patient Registry project (LLS-NPR). We are excited to have this unique opportunity to be at the forefront among blood cancer disease organizations in the United States. To learn more, click these links to read our press release and to watch a 2-minute video that explains the project further. Stan Did It! Stan Kurtz and his team, with help from so many of you, did it. He swam the Catalina Channel and raised his goal of over $25.000 for the CLL Society! Thanks to all who gave, but it’s not too late to share in the joy. Consider a tax-deductible (in the USA) gift of $22, one dollar for each mile he swam in over 12 hours in the Pacific Ocean. Or more. It was an exhilarating and exhausting journey for Patty and me just being on the boat. SEE: https://www.gofundme.com/swimcatalinaforleukemia. The swim was on the local TV news. This will help us to do so much more for others dealing with CLL. Read the news article featured on the Daily Breeze.More pictures and videos on our and his social sites: Swim Catalina Facebook page with frequent updates during swim: https://www.facebook.com/swimcatalina Stan’s Facebook page: https://www.facebook.com/stankurtz2 CLL Society Twitter page: https://twitter.com/cllsociety Featured Video This week in one of our last interviews from ASH 2017, Dr. Koffman hears from Dr. Pagel on how a simple Quality Improvement (QI) educational effort can improve outcomes for CLL patients who are cared for far away from the big research centers. This research points to another strong way to improve CLL care. Another is our Expert Access program. You can read the summary and view the interview here. Upcoming Special events: Lymphoma Research Foundation Sponsored Meetings Thursday, August 9th from 6:00 PM to 8:30 PM in Hasbrouck Heights, NJ The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Hilton Hasbrouck Heights featuring Lori Ann Leslie, MD from the John Theurer Cancer Center at Hackensack University Hospital. Find out more information and register here. Prime Education Sponsored Webinar Join Dr. John Byrd and Dr. Brian Koffman for Managing Toxicities of Novel Therapies and Coordinating Care for CLL/SLL and FL Patients Wednesday, August 15, 2018 at 2:00 PM Eastern / 11:00 AM Pacific Patients (and Caregivers): Would you know the signs of toxicity from Novel Therapies for CLL/SLL and FL if you saw them? Are you clear about toxicity prevention and management strategies? Share your experiences and get the information you need to knowledgeably discuss healthcare decisions with your treatment team. You will have the opportunity to ask our experts questions and hear their recommendations for managing toxicities and addressing other challenges. Register here. Leukemia & Lymphoma Society Sponsored Meetings Wednesday, August 22nd from 6:00 PM to 9:00 PM in Teaneck, NJ LLS invites you to attend Living Well with CLL: Diagnosis, Treatment and Support being held at the Teaneck Marriott at Glenpoint, featuring Anthony Mato, MD from Memorial Sloan Kettering, Alan Skarbnik, MD from John Theurer Cancer Center at Hackensack University Hospital and Kathleen Calivio, BSN from Memorial Sloan Kettering. Dinner will be provided to registered attendees. His event is free but registration is required. Find out more information and Register here.
CLL-Specific Support Group Meetings Coming Up! Tuesday, August 7th at 7:00 PM in Tucker, GA – The Tucker Family Support Group, sponsored by LLS will be meeting. More information here. Wednesday, August 8th at 7:00 PM in Salt Lake City, UT – The Salt Lake City CLL Support Group, sponsored by the CLL Society will be meeting. More information here. Thursday, August 9th at 7:00 PM in Syosset, NY – The Long Island CLL Support Group, sponsored by the CLL Society will be meeting. More information here. Saturday, August 11th at 10:00 AM in Webster, TX – The Houston-area CLL Support Group, sponsored by the CLL Society will be meeting.More information here. Saturday, August 11th at 12:30 PM in North Worcester, MA – The Central Massachusetts CLL Support Group, sponsored by the CLL Society will be meeting. More information here. Saturday, August 11th at 2:00 PM in Orlando, FL – The Orlando CLL Support Group, sponsored by the CLL Society will be meeting. New Location! More information here. Sunday, August 12th at 3:00 PM in Atlanta, GA – The Atlanta Metro CLL Support Group, sponsored by the CLL Society will be meeting. More information here. Sunday, August 12th at 3:00 PM in New York City – The New York City CLL Support Group, sponsored by the CLL Society will be meeting. More information here. Tuesday, August 14th at 7:00 PM in Orange, CA – The Orange County CLL Support Group, sponsored by the CLL Society will be meeting. More information here. Thursday, August 16th at 6:00 PM in Milwaukee, WI – The Milwaukee CLL Support Group, sponsored by the CLL Society will be meeting. More information here. Thursday, August 16th at 7:00 PM in Minnetonka, MN – The Twin Cities CLL Support Group, sponsored by the CLL Society will be meeting. More information here. Thursday, August 16th 7:00 PM in Denver, CO – The Denver CLL Support Group, sponsored by the CLL Society will be meeting. More information here. Saturday, August 18th at 10:00 AM in Belmont, NC – The Charlotte CLL Support Group, sponsored by the CLL Society will be meeting. More information here. Sunday, August 19th at 4:00 PM in San Francisco, CA – The San Francisco CLL Support Group, sponsored by the CLL Society will be meeting. More information here. Cancellations A special note for The Philadelphia CLL Patient Support Group: our meeting on Saturday, August 11th has been canceled due to vacation schedules. Our regularly scheduled meetings will resume in September.
That’s it for now. Stay strong. We are all in this together! Patty
Patricia Koffman/ Co-Founder and Executive Director August 7, 2018 |
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