September 18, 2018

Hello Friends,

Sometimes it’s good to review the basic science that helps ground all the amazing advances in CLL. This week Brian refers you to a BASICS article called What is a Lymph Node? https://cllsociety.org/2016/03/what-is-a-lymph-node/ that helps explain how the new medications such as ibrutinib and idelalisib work in CLL.

Also this week, we’re bringing you the latest learning opportunities and Support Group meetings through the end of this month.
Remember that September is Blood Cancer Awareness Month around the globe! Our fellow blood cancer charities are all working hard to raise awareness. Be sure to follow #FightBloodCancer!

Please support the CLL Society and others who help those with blood cancer live longer and stronger lives.

News

Abbvie recently announced that Minimal Residual Disease Negativity (MRD-) data is being added the venetoclax label, recognizing the growing importance of MRD in managing CLL.

Expert Access is open!

Don’t have access to a CLL expert? Need a second opinion? We are pleased to offer this free resource for patients who need access to a CLL expert through a HIPAA compliant online video consultation.

Upcoming Special events:

Lymphoma Research Foundation Sponsored Meeting 

Thursday, September 20 from 6:00 PM to 8:30 PM in Kansas City, MO

The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Kansas City Marriott Country Club Plaza featuring Siddhartha Ganguly, MD, FACP from the University of Kansas Medical Center. Find out more information and register here.

Leukemia & Lymphoma Society Sponsored Meetings 

Monday, October 1 from 6:30 PM to 8:30 PM in Austin, TX

LLS invites you to attend this Patient Education Program held at Maggiano’s Little Italy, Austin, Texas, featuring Aravind Ramakrishnan, MD from Texas Transplant Institute. Dinner will be provided to registered attendees. This event is free but registration is required. Find out more information and Register here.

Saturday, October 6 from 9:00 AM to 2:45 PM in New York City

LLS invites you to attend this Patient Education Program held at Grand Hyatt New York. The New York, New Jersey and Long Island Chapters of The Leukemia & Lymphoma Society are proud to present this free education event to blood cancer patients, survivors, family members, caregivers and healthcare professionals. Experts in the areas of blood cancer research, treatment, and survivorship will present information on each topic. Our goal is to educate conference participants about treatment options, emerging therapies, management of survivorship issues and LLS resources. This event is free but registration is required.

Find out more information and Register here

CLL-Specific Support Group Meetings Coming Up! 

Tuesday, September 18th at 7:00 PM in Chicago, IL – The Chicago CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Thursday, September 20th at 6:00 PM in Milwaukee, WI – The Milwaukee CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Thursday, September 20th at 7:00 PM in Minnetonka, MN – The Twin Cities CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Thursday, September 20th at 7:00 PM in Denver, CO – The Denver CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Saturday, September 22nd at 1:00 PM in Newton Lower Falls, MA – The Boston CLL Patient Support Group, sponsored by the CLL Society will be meeting. More information here.

Saturday, September 22nd at 10:00 AM in Nashville, TN – The Nashville CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Tuesday, September 25th at 7:00 PM in Berea, OH – The Northeast Ohio CLL Patient Support Group, sponsored by the CLL Society will be meeting. More information here.

Wednesday, September 26th at 6:00 PM in Montreal, Canada – The Montreal CLL Support Group – Groupe de soutien de la LLC de Montréal, cosponsored by Lymphoma Canada and the CLL Society will be meeting. More information here.

Wednesday, September 26th at 7:00 PM in Rochester, NY – The Rochester NY CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

That’s it for now.

Stay strong.

We are all in this together!

Patty

Patricia Koffman/ Co-Founder and Executive Director
CLL Society Inc.
P.O. Box 1390
Claremont, CA 91711

September 18, 2018