My friends at SILLC in France produced this fun bilingual cartoon comic book to explain CLL (chronic lymphocytic leukemia) and its cousin blood cancer Waldenstrom’s Macroglobulinemia (WM).
The Association of Support and Information for Chronic Lymphocytic Leukemia and disease Waldenstrom (SILLC) is intended:
- to patients, their families and their loved ones,
- healthcare professionals.
Or as they say in French
L’Association de Soutien et d’Information à la Leucémie Lymphoïde Chronique et la maladie de Waldenström (SILLC) est destinée:
- aux patients, à leur famille et à leurs proches,
- aux professionnels de santé.
The CLL Society is heavily involved with CLL-AN (CLL Advocacy Network) where I serve on the steering committee with a good friend from SILLC and a handful of others. CLL-AN has a global reach.
The CLLAN Mission is to enhance CLL patient care and improve outcomes by collaboratively:
- Acting as an international collective representative of CLL patient groups, interacting with healthcare funding, treatment approval, and treatment research organisations to improve access to novel treatments globally.
- Developing tools to empower patients to become advocates to influence policy makers and participate in health technology assessments, research and clinical trial development.
- Sharing best practices and resources between patient groups through annual meetings, education and a network website to improve CLL knowledge and awareness.
- Ensuring every patient has access to quality resources and support by engaging existing patient organizations to become network members and provide guidance on patient organization development in countries currently under-supported.
The CLL Society is dedicated to collaboration with all organizations that serve the CLL community around the world, and as does SILLC, share our content to those who might benefit.
In fact the CLL Society has worked with LLS, LRF, CancerCare, ERIC, iwCLL, Lymphoma Australia, CLL Ireland, PAN Foundation, CancerSupportCommunity, and many others.