November 27, 2018

Dear Friends and Supporters of the CLL Society,

This is the most exciting, hectic and rewarding time of the year for the CLL Society, as we are soon headed to ASH 2018 in San Diego to bring back the information that will make you a smarter patient. Every year we are filled with amazement and gratitude for the unstoppable energy expended by clinical researchers, bench scientists, pharmaceutical companies, and others who hold CLL and its challenges for the patient in the crosshairs. Every year we witness giant leaps forward in understanding the biology and the development of new and more precisely targeted treatment options.

We will be there with camera in hand. We will bring you the news. Meanwhile, stay strong. We are all in this together!

Sincerely,

Patty Koffman
CLL Society Inc.
P.O. Box 1390
Claremont, CA 91711
November 27, 2018

Remember the CLL Society on Giving Tuesday (November 27)

POP QUIZ! What do these 50 + CLL doctors have in common?

Dr. John Byrd, Dr. Thomas Kipps, Dr. Richard Furman, Dr. Anthony Mato, Dr. John Pagel, Dr. Steve Rosen, Dr. William Wierda, Dr. Sanjay Sharma, Dr. Kanti Rai, Dr. Michael Hallek, Dr. David Maloney, Professor Peter Hillmen, Dr. Stephen Stilgenbauer, Professor John Seymour, Dr. Matthew Davids, Dr. Susan O’Brien, Dr. Jennifer Brown, Dr. Adrian Wiestner, Dr. Januario Castro, Dr. Michael Choi, Dr. Andrew Roberts, Professor John Gribben, Dr. George Follows, Dr. Claire Dearden, Dr. Kostas Stamatopoulos,  Dr. Paolo Ghia, Dr. Jan Burger, Dr. Tait Shanafelt, Dr. Andrew Zelenetz, Dr. Neil Kay, Dr. Cameron Turtle, Dr. Jeffrey Jones, Dr. Constantine Tan, Dr. Jeffrey Sharman, Dr. Tanya Siddiqi, Dr. Aliki Xochelli, Dr. Tal Munir, Dr. Robert O’Connor, Dr. Patrick Thornton, Dr. Nitin Jain, Dr. Deborah Stephens, Dr. Farrukh Awan, Dr. Ian Flinn, Dr. Danielle Brander, Dr. Utkarsh Acharya, Dr. Joe Flynn, Dr. Mark Wildgust, Dr. Philip Payne, Dr. Chris Fagen, Dr. Ben Kennedy, Dr. Donna Neuberg.

Answer: We’ve interviewed them all! Soon we’re off to ASH in San Diego (American Society of Hematology 60th Annual Meeting). Keep the momentum going! Donate to the CLL Society. Thank you!

CURE 2018 CLL Hero Recipients

Our co-founder and Chief Medical Officer, Dr. Brian Koffman, has been honored as 1 of 4 CURE 2018 Chronic Lymphocytic Leukemia Heroes.

There with be a celebration on Sunday evening in San Diego in conjunction with ASH with a chance to talk with Brian and the other amazing winners or their representatives.

You are all welcome, but please register here: https://www.curetoday.com/cllheroes 

Expert Access is open!

Don’t have access to a CLL expert? Need a second opinion? We are pleased to offer a free 2nd opinion from a top CLL expert through a HIPAA compliant online video consultation. Don’t wait, apply now! Approximately 16 spots left! 

CLL Comic Book

This week we feature a creative and educational comic book on CLL from our friends at the French CLL nonprofit organization, SILLC.

New LLS Patient Financial Assistance Program

Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment.  Click here to learn more about this new assistance program.

Prime Archived Webinars Now Online!

Prime Education in partnership with the Leukemia & Lymphoma Society (LLS) and The CLL Society has just posted two new FREE archived  webinars! Click here for more information!

CLL-Specific Support Group Meetings Coming Up!

Tuesday, November 27th at 7:00 PM in Berea, OH – The Northeast Ohio CLL Patient Support Group, sponsored by the CLL Society will be meeting. More information here.

Wednesday, November 28th at 7:00 PM in Rochester, NY – The Rochester NY CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Sunday, December 2nd at 12:00 PM in Albany, NY – The CLL Support Group of Albany will be meeting. More information here.

Monday, December 3rd at 6:00 PM in Indianapolis, IN – The CLL and Indolent Blood Cancers Support Group will be meeting. More information here.

Tuesday, December 4th at 7:00 PM in Tucker, GA – The Tucker Family Support Group, sponsored by LLS will be meeting. More information here.

Wednesday, December 5th at 4:00 PM in La Jolla, CA – The UCSD CLL Education and Support Group will be meeting. More information here.

Wednesday, December 5th at 7:00 PM in New Orleans, LA – The CLL Group for Southeast Louisiana, sponsored by the CLL Society will be meeting. More information here.

Thursday, December 6th at 7:00 PM in New City, NY – The CLL Information & Support Group of Rockland County NY, sponsored by the Leukemia & Lymphoma Society will be meeting. More information here.

Saturday, December 8th at 10:00 AM in Webster, TX – The Houston-area CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Saturday, December 8th at 12:30 PM in North Worcester, MA – The Central Massachusetts CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Saturday, December 8th at 1:00 PM in Gig Harbor, WA – The Seattle/Olympic Peninsula CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Saturday, December 8th at 2:00 PM in Orlando, FL – The Orlando CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Saturday, December 8th at 2:00 PM in Media, PA – The Philadelphia CLL Support Group, sponsored by the CLL Society, will be meeting. More information here.

Sunday, December 9th at 3:00 PM in Atlanta, GA – The Atlanta Metro CLL Support Group, sponsored by the CLL Society will be meeting. More information here.

Click here for the most up-to-date information on all CLL Society support group meetings.

Upcoming Special events:

Thursday, November 29, 2018, 1:30 – 2:30 pm, Eastern Time

The CLL Society, in collaboration with CancerCare® invites you to attend a FREE online workshop: Life with CLL: Taking Charge of Your Treatment Schedule, Part II of Life with Chronic Lymphocytic Leukemia (CLL) featuring Lindsey E. Roeker, MD from Memorial Sloan Kettering Cancer Center, Guadalupe R. Palos, RN, MSW, DrPH from The University of Texas MD Anderson Cancer Center, Sharon Flynn, MS, RN, ANP-BC, AOCNS, BMTCN from National Institutes of Health, Clinical Research Center, Patricia Koffman from The CLL Society Inc., and Carolyn Messner, DSW, OSW-C, FAPOS, FAOSW from CancerCare®. Registrants can listen in live over the phone or online as a webcast. Find out more information and register here.

Lymphoma Research Foundation Sponsored Meetings   

Tuesday, November 27, 2018 from 6:00 PM to 8:30 PM in Dallas, TX

The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the DoubleTree by Hilton Hotel Dallas Near the Galleria featuring Farrukh Awan, MD, MBBS from University of Texas Southwestern Medical Center. Find out more information and register here.

Tuesday, November 27, 2018 from 6:00 PM to 8:30 PM in Portland, OR

The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Courtyard by Marriott Portland City Center featuring Alexey Danilov, MD, PhD from Oregon Health and Science University Hospital. Find out more information and register here.

Leukemia & Lymphoma Society Sponsored Meetings

Monday, December 10 from 6:30 PM to 9:00 PM in Pikesville, MD

LLS invites you to attend this FREE Patient Education Program: Living Well with CLL: diagnosis, treatment and support held at Ruth’s Chris Steak House, Crystal Room, Pikesville, MD, featuring Adrian Wiestner, MD, PhD, and Pia Nierman, RN from National Heart, Lung and Blood Institute, National Institutes of Health. Dinner will be provided to registered attendees. This event is free but registration is required. Find out more information and Register here.