June 11, 2019
Dear Friends and Supporters of the CLL Society,
It has been a year of polar contrasts, with the sadness of the deaths of still too many people with CLL, and the promise of the death of chemo-immunotherapy, heralding a new era of treatment for those willing to listen to the good news.
Though the progress in the development of better treatments has been amazing, we aren’t done.
In 2019 the CLL Society, with the help of many friends, will be working to fund major research in CLL.
We will focus on these four screaming unmet needs:
- Helping those who relapse after both venetoclax and ibrutinib, who have few good remaining options
- Richter’s Transformation, a dire problem becoming an increasingly common as we are surviving longer
- Reconstituting our immune system, so that we don’t die of second cancers or infections
- Finding a cure for all of us
Help us if you can with an end of the year tax deductible donation to fund our research and to ensure that all CLL patients are getting their best possible care today.
Enjoy our newsletter, full of helpful stories and lessons from ASH, including my interview with Professor Peter Hillmen on venetoclax resistance, Dr. LeClair on platelets, pharmacist Tom Henry on controlling the costs of medications, and many great stories shared by patients. Read the results of our last survey and please complete our new caregiver survey at the bottom of the page here.
Read my latest blog post on end of the year reflections.
And please have a wonderful new year.
Please save the date:
Join us live or for online streaming at our first 2019 post-ASH CLL Society Patient Educational Forum, Feb. 9th at the City of Hope. Click here for more information and to register!
San Diego CLL Support Group
In conjunction with UCSD, we’re in the process of rebooting our San Diego CLL Support Group. If you were attending before or would like to begin attending, please take our short interest survey.
Expert Access is open!
Don’t have access to a CLL expert? Need a second opinion? We are pleased to offer a free 2nd opinion from a top CLL expert through a HIPAA compliant online video consultation. Don’t wait, apply now! Approximately 16 spots left!
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Click here to learn more about this new assistance program.
Prime Archived Webinars Now Online!
Prime Education in partnership with the Leukemia & Lymphoma Society (LLS) and The CLL Society has just posted two new FREE archived webinars! Click here for more information!
CLL-Specific Support Group Meetings Coming Up!
Thursday, January 3rd at 7:00 PM in New City, NY – The CLL Information & Support Group of Rockland County NY, sponsored by the Leukemia & Lymphoma Society will be meeting. More information here.
Monday, January 7th at 6:00 PM in Indianapolis, IN – The CLL and Indolent Blood Cancers Support Group will be meeting. More information here.
Tuesday, January 8th at 7:00 PM in Orange, CA – The Orange County CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Wednesday, January 9th at 6:00 PM in Montreal, Canada – The Montreal CLL Support Group – Groupe de soutien de la LLC de Montréal, cosponsored by Lymphoma Canada and the CLL Society will be meeting. More information here.
Wednesday, January 9th at 7:00 PM in Salt Lake City, UT – The Salt Lake City CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Thursday, January 10th at 6:45 PM in Syosset, NY – The Long Island CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Saturday, January 12th at 10:00 AM in Webster, TX – The Houston-area CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Saturday, January 12th at 10:30 AM in Tampa, FL – The Central Florida CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Saturday, January 12th at 12:30 PM in North Worcester, MA – The Central Massachusetts CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Saturday, January 12th at 1:00 PM in Gig Harbor, WA – The Seattle/Olympic Peninsula CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Saturday, January 12th at 2:00 PM in Orlando, FL – The Orlando CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Saturday, January 12th at 2:00 PM in Media, PA – The Philadelphia CLL Support Group, sponsored by the CLL Society, will be meeting. More information here.
Sunday, January 13th at 3:00 PM in Atlanta, GA – The Atlanta Metro CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Sunday, January 13th at 3:00 PM in New York City – The New York City CLL Support Group, sponsored by the CLL Society, will be meeting. More information here.
Special Announcement: The following support groups will not be meeting in January. We plan on continuing with the February meetings as currently scheduled.
- Leukemia and Lymphoma Society – Tucker – Family Support Group
- Milwaukee CLL Support Group
Click here for the most up-to-date information on all CLL Society support group meetings.
Upcoming Special events:
Lymphoma Research Foundation Sponsored Meetings
Tuesday, January 15, 2019 from 1:30 PM – 2:30 PM ET
The Lymphoma Research Foundation invites you to attend a FREE teleconference: Update on Lymphoma from the 2018 American Society of Hematology (ASH) Annual Meeting Laurie H. Sehn, MD, MPH from the Centre for Lymphoid Cancer, Andrew M. Evens, DO, MSc, FACP from Rutgers Cancer Institute of New Jersey, Peggy Ann Torney from Lymphoma Research Foundation, and Carolyn Messner, DSW, OSW-C, FAPOS, FAOSW from CancerCare®. Find out more information and register here.
Leukemia & Lymphoma Society Sponsored Meetings
Tuesday, January 15, 2019 from 5:30 PM to 8:00 PM in Athens, GA
LLS invites you to attend this FREE Patient Education Program: Living Well with CLL: diagnosis, treatment and support held at Hotel Indigo Athens, Athens, GA, featuring Gustavo Westin, MD, MPH, from University Cancer & Blood Center. Dinner will be provided to registered attendees. This event is free but registration is required. Find out more information and register here.
Meanwhile, stay strong. We are all in this together!
Sincerely,
Brian
Executive Vice President/Chief Medical Officer
CLL Society
CLL Society
December 31, 2018
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