New this week!
We continue to highlight articles from out latest CLL Society Tribune Newsletter ! This week, we feature our latest Ask & Tell survey results: The Caregiver . In an effort to better understand and address the needs of caregivers, we asked our readers’ questions regarding the benefits of caregiver specific support services and education. Read the results .
The subject of our Ask & Tell survey is Shared Decision Making. Whether you are a patient or caregiver, please complete this short survey and we will share the results in our next edition of our newsletter in June!
Infectious diseases are a major cause of misery and death for CLL patients and vaccines may help prevent them. The NIH is studying the new shingles and hepatitis B vaccine in two free trials that I strongly recommend for your consideration. Read my Q&A with Dr. Chris Pleyer on the trials .
The Cancer Support Community (CSC) has announced in partnership with Airbnb that they will provide free accommodations for patients who need to travel for their cancer treatments. Visit our website for more about CSC and all their services.
Register now for our post-ASH CLL Society Patient and Caregiver Educational Forums!
Join us on April 13th in Nashville, TN at the Sarah Cannon Research Institute, for our next Educational Forum. Find out more information and register here !
Educational Forums coming up soon!
April 27, 2019 – Mayo Clinic, Minneapolis, MN
May 4, 2019 – Dana-Farber Cancer Institute, Boston, MA
May 18, 2019 – Weill Cornell Medicine, New York City
May 25, 2019 – UC San Diego Health, La Jolla, CA
Click here for the latest information on our Educational Forums.
Expert Access Has Reopened!
Expert Access, our free online second opinion program is now open again. If you live in the USA and want a second look at your CLL, you are welcome to apply here: https://cllsociety.org/cll-society-expert-access/
New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Learn more about this new assistance program.
Prime Archived Webinars Now Online!
Prime Education in partnership with the Leukemia & Lymphoma Society (LLS) and The CLL Society has just posted two new FREE archived webinars! Find more information here!
CLL Society Sponsored Support Group Meetings Coming Up!
The Orange County CLL Support Group – April 9 at 7:00 pm
Houston-area CLL Support Group – April 9 at 7:00 pm
Montreal CLL/SLL Support Group – April 10 at 6:00 pm
Salt Lake City CLL Support Grou p – April 10 at 7:00 pm
Central Massachusetts CLL Support Group – April 13 at 12:30 pm
Seattle-Olympic Peninsula CLL Support Group – April 13 at 1:00 pm
Orlando CLL Support Group – April 13 at 2:00 pm
The CLL Support Group of Albany (NY) – April 14 at 12:00 pm
New York City CLL Support Group – April 14 at 3:00 pm
City of Hope CLL Support Group – April 15 at 7:00 pm
Chicago CLL Support Group – April 16 at 7:00 pm
Milwaukee CLL Support Group – April 18 at 6:00 pm
Long Island CLL Support Group – April 18 at 6:45 pm
New Jersey CLL Patient Support Group – April 18 at 7:00 pm
Central Florida CLL Support Group – April 20 at 10:30 am
West LA CLL Support Group – April 20 at 11:00 am
Oberlin, OH, CLL Patient Support Group – April 20 at 1:00 pm
Philadelphia CLL Patient Support Group – April 20 at 2:00 pm
San Francisco area CLL Patient Support Group – April 21 at 4:00 pm
Special Announcement: The following Support groups have canceled in April:
- Atlanta CLL Support group is combining their April and May meetings for May 5th
- Charlotte CLL Patient Support Group
- Twin Cities CLL Support Group
- Washington DC-area CLL Patient Support Group
Visit our website for the most up-to-date information on all CLL Society support group meetings.
Hematologic Malignancies Meetings
Saturday, May 18, 2019. Live Virtual Conference. Start Time: 9:00 am EDT
Our Chief Medical Officer, Dr. Koffman will be discussing Clinical Advances: Individualizing Treatment for Chronic Lymphocytic Leukemia.
While directed at hematologists and oncologists, patients are welcome to listen in to this free educational webinar. Learn more .
Leukemia & Lymphoma Society Sponsored Meetings
Wednesday, April 10, 2019 from 5:00 PM to 8:00 PM in Erie, PA
LLS invites you to attend this FREE Patient Education Program: Living Well with CLL: diagnosis, treatment and support held at Ambassador Center, Hemingway Ballroom, Erie, PA, featuring Jing-Zhou Hou MD, PhD, and Liz Stroup, MSW, LCSW, from UPMC CancerCenter. Dinner will be provided to registered attendees. This event is free but registration is required. Find out more information and register here .
Lymphoma Research Foundation Sponsored Meetings
Tuesday, April 9, 2019 from 6:00 PM to 8:30 PM in Bloomington, MN
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Minneapolis Airport Marriott featuring Stephen Ansell, MD, PhD from Mayo Clinic. Find out more information and register here .
Saturday, April 13, 2019 from 9:00 AM to 3:00 PM in Washington, DC
The DC Metro Chapter of The Leukemia & Lymphoma Society is proud to present this free education event to blood cancer patients, survivors, family members, caregivers and healthcare professionals. Experts in the areas of blood cancer research, treatment, and survivorship will present information on each topic. Our goal is to educate conference participants about treatment options, emerging therapies, management of survivorship issues and LLS resources. Find out more information and register here .