May 14, 2019

Our Chief Medical Officer, Dr. Brian Koffman will be at the Long Island Support Group on May 16, and then at our NYC Educational Forum two days later. Plan to attend one or both, and say hello!

We invite you to attend our CLL Society Patient and Caregiver Educational Forums. Register now!

Featured speakers will present the very latest advances in CLL research, clinical trials, treatment options, patient perspectives, and tips to become an effective self-advocate.

Join us on May 18th in New York City at Weill Cornell Medicine, for our next Educational Forum. Find out more information and register here!

Our last Educational Forum for 2018-2019 this May

May 25, 2019 – UC San Diego Health, La Jolla, CA

You can find the latest information on our Educational Forums here.

CLL Society Webinar

Money Matters: Help is There to Prevent Financial Toxicity

Tuesday, June 4, 2019 at 10:00 AM PDT, 1:00 PM EDT

Help is out there! Join us to learn how to be your own self-advocate, learn insurance basics and where you can find help to prevent financial toxicity. Register today!

New this week!

If ibrutinib is good at stopping CLL from growing and venetoclax is good at killing CLL cells, then Prof Hillmen asks the question: What happens when we combine them? He shares the exciting results of the CLARITY trial in my ASH 2018 interview here.

Acalabrutinib is a newer BTK inhibitor that is now proven to prolong life for previously treated CLL patients. It is already approved for mantle cell lymphoma, but not yet CLL, but can be approved off label. For more information, please read here.

The CLL Society wants YOU!

It is without a doubt that your unique skills will perfectly fit our needs! We are looking for volunteers just like you to help the CLL Society continue it’s mission for meeting the many needs of the CLL community. Sign up today!

Expert Access Has Reopened!

Expert Access, our free online second opinion program is now open again. If you live in the USA and want a second look at your CLL, you are welcome to apply here.

CLL Society Sponsored Support Group Meetings Coming Up!

Long Island CLL Support Group – May 16 @ 7:00 pm

Dr. Brian Koffman, the co-founder and Chief Medical Officer of the CLL Society will be attending.

The Orange County CLL Support Group – May 14 @ 7:00 pm

Milwaukee CLL Support Group – May 16 @ 6:00 pm

New Jersey CLL Patient Support Group – May 16 @ 7:00 pm

Twin Cities CLL Support Group – May 16 @ 7:00 pm

Charlotte CLL Patient Support Group – May 18 @ 10:00 am

Central Florida CLL Support Group – May 18 @ 10:30 am

Oberlin, OH, CLL Patient Support Group – May 18 @ 1:00 pm

Washington DC-area CLL Patient Support Group – May 18 @ 3:00 pm

San Francisco area CLL Patient Support Group – May 19 @ 4:00 pm

City of Hope CLL Support Group – May 20 @ 7:00 pm

Chicago CLL Support Group – May 21 @ 7:00 pm

Rochester NY CLL Support Group – May 22 @ 7:00 pm

Nashville CLL Patient Support Group – May 25 @ 10:00 am

Boston CLL Patient Support Group – May 25 @ 1:00 pm

Special Announcement: the following support groups will not be meeting in May

• New York City CLL Support Group
• Philadelphia CLL Patient Support Group
• West LA CLL Support Group

Visit our website for the most up-to-date information on all CLL Society support group meetings.

Hematologic Malignancies Meetings

Saturday, May 18, 2019. Live Virtual Conference. Start Time: 9:00 am EDT

Our Chief Medical Officer, Dr. Koffman will be discussing Clinical Advances: Individualizing Treatment for Chronic Lymphocytic Leukemia.

While directed at hematologists and oncologists, patients are welcome to listen in to this free educational webinar. Learn more.

CancerCare Teleconference

Thursday, June 13, 2019, 4:00 – 5:00 pm, Eastern Time

The CLL Society, in collaboration with CancerCare® invites you to attend a FREE online workshop: Update on Chronic Lymphocytic Leukemia Part I of Living with Chronic Lymphocytic Leukemia featuring Daniel O. Persky, MD from University of Arizona Cancer Center, Mazyar Shadman, MD, MPH from University of Washington School of Medicine, Deborah M. Stephens, DO from Huntsman Cancer Institute, Patricia Koffman from CLL Society Inc., Carolyn Messner, DSW, OSW-C, FAPOS, FAOSW from CancerCare®. Registrants can listen in live over the phone or online as a webcast. Find out more information and register here.

Thursday, June 20, 2019, 4:00 – 5:00 pm, Eastern Time

The CLL Society, in collaboration with CancerCare® invites you to attend a FREE online workshop: Current Perspectives on the Treatment of Relapsed/Refractory Chronic Lymphocytic Leukemia (CLL) Part II of Living with Chronic Lymphocytic Leukemia featuring Alexey V. Danilov, MD, PhD from Oregon Health & Science University (OHSU), Patricia Koffman from CLL Society Inc., Carolyn Messner, DSW, OSW-C, FAPOS, FAOSW from CancerCare®. Registrants can listen in live over the phone or online as a webcast. Find out more information and register here.

Leukemia & Lymphoma Society Sponsored Meetings

Tuesday, May 21, 2019 from 6:00 PM to 8:30 PM in Louisville, KY

LLS invites you to attend this FREE Patient Education Program: Living Well with CLL: diagnosis, treatment and support held at Noah’s Event Venue, Louisville, KY, featuring Mohamed Hegazi, MD from University of Louisville, and Sarah Everette, MSSW, CSW, OSW-C from Baptist Health Louisville Cancer Care Center. Dinner will be provided to registered attendees. This event is free but registration is required. Find out more information and register here.

Lymphoma Research Foundation Sponsored Meetings

Thursday, May 16, 2019 from 6:30 PM – 8:30 PM in Seattle, WA

The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Sheraton Grand Seattle featuring Paul S. Martin, MD from Seattle Cancer Care Alliance at Northwest Hospital. Find out more information and register here.