June 25, 2019
We invite you to attend our CLL Society Webinars
Monday, July 22, 2019, at 10:00 AM PDT / 1:00 PM EDT
A Psychological Perspective: Dealing with the CLL Emotional Roller Coaster
Anxiety, anger, fatigue, depression, are just some of the emotions/symptoms we may experience after diagnosis. Join us to talk about what CLL patients may face and how to manage the emotional roller coaster. Register here.
New this week!
Last week we published the CLL Society Tribune chock full of articles, remembrances, creative efforts, news, research, our survey and the results of our last survey.
For anyone deciding about first CLL therapy, including hematologists, the interview and abstract from ASH 2018 with Dr. Tait Shanafelt, the principle investigator of the large ECOG multi-center trial that proved Ibrutinib based therapy was superior to FCR for almost all treatment naïve patients should be required reading.
But there is much more to read in the Tribune. Check it out.
Also this week, the CLL Society is proud that our innovative program, Expert Access that provides free expert second opinions to CLL patients, is getting wider recognition. Read more!
The CLL Society wants YOU!
It is without a doubt that your unique skills will perfectly fit our needs! We are looking for volunteers just like you to help the CLL Society continue it’s mission for meeting the many needs of the CLL community. Sign up today!
Expert Access Has Reopened!
Expert Access, our free online second opinion program is now open again. If you live in the USA and want a second look at your CLL, you are welcome to apply here.
New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
Ft. Lauderdale / Miami, FL
Fort Worth, TX
Buffalo, NY
Cincinnati, OH
Greater Lehigh Valley, PA
Greensboro, NC
Hartford, CT
Las Vegas, NV
Palm Springs / Coachella Valley, CA
Phoenix, AZ
Raleigh/Durham, NC
Sacramento, CA
Santa Barbara/Lompoc, CA
Sarasota, FL
St. Louis, MO
Seattle and All Points North
Toronto, ON Canada
Tucson, AZ
FundFinder
Pan Foundation has opened its co-payment assistance program for CLL. To view more information or manage your account, log in to FundFinder.
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Learn more about this new assistance program.
CLL Society Sponsored Support Group Meetings Coming Up!
The Orange County CLL Support Group – July 9 @ 7:00 pm
Salt Lake City CLL Support Group – July 10 @ 7:00 pm
Long Island CLL Support Group – July 11 @ 6:45 pm
Houston-area CLL Support Group – July 13 @ 10:00 am
Central Massachusetts CLL Support Group – July 13 @ 12:30 pm
Seattle-Olympic Peninsula CLL Support Group – July 13 @ 1:00 pm
Orlando CLL Support Group – July 13 @ 2:00 pm
Philadelphia CLL Patient Support Group – July 13 @ 2:00 pm
Atlanta Metro CLL Support Group – July 14 @ 3:00 pm
New York City CLL Support Group – July 14 @ 3:00 pm
City of Hope CLL Support Group – July 15 @ 7:00 pm
Special Announcement: the San Diego CLL Society Support and Education Meeting has been canceled for the month of July.
Visit our website for the most up-to-date information on all CLL Society support group meetings.
Leukemia & Lymphoma Society Sponsored Meetings
Leukemia and Lymphoma Society – Tucker – Family Support Group – July 2 @ 7:00 pm
The CLL Information & Support Group of Rockland County NY – July 11 @ 7:00 pm
The Leukemia & Lymphoma Society of Canada Sponsored Meetings
Montreal CLL/SLL Support Group – Groupe de soutien de la LLC de Montréal – July 10 @ 6:00 pm
Lymphoma Research Foundation Sponsored Meetings
Thursday, August 22, 2019 from 6:00 PM – 8:30 PM in Chicago, IL
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the The Westin Chicago River North featuring Reem Karmali, MD, MS from Northwestern Medicine. Find out more information and register here.
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