August 27, 2019
New this week!
Professor Hoffbrand gives us a remarkable history lesson on the last 50 years of CLL treatment. His metaphor of weeds and flowers is not to be missed. Spoiler alert: Treatment is much better today.
CAR-T was been in the news. Please take a look at Larry Marion’s introduction and link to Pulitzer Prize winner, Dr. Mukherjee’s overview and commentary in the New Yorker.
Paid Market Research Opportunities
The CLL Society is pleased to inform you of the opportunity to participate in CLL-related marketing surveys. If interested, you can learn more here.
Expert Access Is Open!
Expert Access, our free online second opinion program is now open. If you live in the USA and want a second look at your CLL from a world expert, you are welcome to apply here. Even if you have used the program before, may reapply if you need new clinical advice.
Do you shop at Amazon?
Please use smile.amazon.com for your shopping and a percentage of your purchases today and going forward will be donated to the CLL Society when you select us as your preferred charity. It costs you nothing and helps us.
New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
Ft. Lauderdale / Miami, FL
Fort Worth, TX
Buffalo, NY
Cincinnati, OH
Greater Lehigh Valley, PA
Greensboro, NC
Hartford, CT
Las Vegas, NV
Palm Springs / Coachella Valley, CA
Phoenix, AZ
Raleigh/Durham, NC
Sacramento, CA
Santa Barbara/Lompoc, CA
Sarasota, FL
St. Louis, MO
Seattle and All Points North
Toronto, ON Canada
Tucson, AZ
FundFinder
Pan Foundation has opened its co-payment assistance program for CLL. To view more information or manage your account, log in to FundFinder.
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Learn more about this new assistance program.
CLL Society Sponsored Support Group Meetings Coming Up!
Northeast Ohio CLL Patient Support Group – July 23 @ 7:00 pm
Rochester NY CLL Support Group – July 24 @ 7:00 pm
Nashville CLL Patient Support Group – July 27 @ 12:00 pm
Boston CLL Patient Support Group – July 27 @ 1:00 pm
DFW – Dallas Area CLL Patient Support Group – July 28 @ 3:00 pm
New Orleans and Surrounding Areas CLL Support Group – July 31 @ 6:30 pm
The CLL Information & Support Group of Rockland County NY – August 1 @ 7:00 pm
Visit our website for the most up-to-date information on all CLL Society support group meetings.
Patient Power Meetings
Saturday, July 27, 2019 from 8:45 AM – 12:30 PM EDT in Mason, OH
Accessing State-of-the-Art CLL Care: What’s Right for You?
Join us in person or online at the Great Wolf Lodge Conference Center, Mason OH – With recent advances in CLL treatment, how do you know which is right for you? Register Here for this CLL event to learn advice from CLL experts and patients. Don’t forget to send us your questions in advance to CLL@patientpower.info.
Lymphoma Research Foundation Meetings
Thursday, August 22, 2019 from 6:00 PM – 8:30 PM in Chicago, IL
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the The Westin Chicago River North featuring Reem Karmali, MD, MS from Northwestern Medicine. Find out more information and register here.
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