August 27, 2019
New this week!
CAR-T therapy in CLL is both challenging and promising. Dr. Siddiqi presents the positive early results with Liso-cel or JCAR-17 .
While biosimilars hold the promise of reducing cost, realizing that can take a long time. For more on the recent approval of a biosimilar to rituximab, please see what our CLL expert pharmacist Tom Henry had to say .
We are proud to soon be launching our new package of resources on palliative care and end of life issues. Please complete our survey and register for our upcoming webinar We are All Going to Die – Being Prepared on Sept 10 at 10 AM PDT here .
The CLL Society is proud to have worked with LLS and the International Waldenstrom Macroglobulinemia Foundation (IWMF) for a patient registry. Thanks to those who participated. The interim report is here .
Paid Market Research Opportunities
The CLL Society is pleased to inform you of the opportunity to participate in CLL-related marketing surveys. If interested, you can learn more here .
Expert Access Is Open!
Expert Access, our free online second opinion program is now open. If you live in the USA and want a second look at your CLL from a world expert, you are welcome to apply here . Even if you have used the program before, you may reapply if you need new clinical advice.
Do you shop at Amazon?
Please use smile.amazon.com for your shopping and a percentage of your purchases today and going forward will be donated to the CLL Society when you select us as your preferred charity. It costs you nothing and helps us.
New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
Ft. Lauderdale / Miami, FL
Fort Worth, TX
Buffalo, NY
Cincinnati, OH
Greater Lehigh Valley, PA
Greensboro, NC
Hartford, CT
Las Vegas, NV
Palm Springs / Coachella Valley, CA
Phoenix, AZ
Raleigh/Durham, NC
Sacramento, CA
Santa Barbara/Lompoc, CA
Sarasota, FL
St. Louis, MO
Seattle and All Points North
Toronto, ON Canada
Tucson, AZ
FundFinder
Pan Foundation has opened its co-payment assistance program for CLL. To view more information or manage your account, log in to FundFinder.
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Learn more about this new assistance program.
CLL Society Sponsored Support Group Meetings Coming Up!
New Orleans and Surrounding Areas CLL Support Group – July 31 @ 6:30 pm
San Diego CLL Society Support and Education Meeting – August 7 @ 4:00 pm
Long Island CLL Support Group – August 8 @ 6:45 pm
Central Massachusetts CLL Support Group – August 10 @ 12:30 pm
Seattle-Olympic Peninsula CLL Support Group – August 10 @ 1:00 pm
Orlando CLL Support Group – August 10 @ 2:00 pm
Philadelphia CLL Patient Support Group – August 10 @ 2:00 pm
Atlanta Metro CLL Support Group – August 11 @ 3:00 pm
SPECIAL ANNOUNCEMENT : The Washington DC Support Group will not be meeting in August.
Visit our website for the most up-to-date information on all CLL Society support group meetings.
Lymphoma Research Foundation Meetings
Thursday, August 22, 2019 from 6:00 PM – 8:30 PM in Chicago, IL
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the The Westin Chicago River North featuring Reem Karmali, MD, MS from Northwestern Medicine. Find out more information and register here .
Leukemia & Lymphoma Society Meetings
The CLL Information & Support Group of Rockland County NY – August 1 @ 7:00 pm
Leukemia and Lymphoma Society – Tucker – Family Support Group – August 6 @ 7:00 pm
IU Simon Cancer Center Meeting
CLL and Indolent Blood Cancers Support Group – August 5 @ 6:00 pm
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