July 9, 2019

We invite you to attend our CLL Society Webinars

Monday, July 22, 2019, at 10:00 AM PDT / 1:00 PM EDT

A Psychological Perspective: Dealing with the CLL Emotional Roller Coaster

Anxiety, anger, fatigue, depression, are just some of the emotions/symptoms we may experience after diagnosis. Join us to talk about what CLL patients may face and how to manage the emotional roller coaster. Register here.

If you missed the CLL Society Webinar, “Money Matters: Help is There to Prevent Financial Toxicity,” you can find the webinar recording, presentation slides, and answered audience questions linked here for this important topic.

New this week!

A Phase 1/2 Study of Oral LOXO-305 in Patients With Previously Treated CLL offering a novel drug that non-covalently blocks BTK is now open.

Are you ready for 6 quick statements from Dr. Koffman on different topics from EHA (European Hematology Assoc.) Annual Meeting available here:

Also this week, enjoy Dr. Koffman’s interview by an Italian reporter here.

If you haven’t read from cover to cover the CLL Society Tribune, please take a look at Dr. Leclair’s article on red blood cells and this by Dr. Baliakas on complex karyotypes in CLL, plus all the strong stories and art from fellow patients and caregivers and much more.

The CLL Society wants YOU!

It is without a doubt that your unique skills will perfectly fit our needs! We are looking for volunteers just like you to help the CLL Society continue it’s mission for meeting the many needs of the CLL community. Sign up today!

Patients and Caregivers Needed for Marketing Study: Compensation Available

Pillar Patient Advocates LLC are looking to include patients or caregivers in a 60 minute interview, conducted online or by phone for the week of July 22 for approximately 18 patients and 10 caregivers. In appreciation, participants are compensated $100 for their time and input. To be considered, the firm is asking that patients are on a Watch and Wait protocol, or have not received more than one line of treatment. The purpose of the interview is to review and evaluate a website that is in development for a pharmaceutical company with treatment for CLL and MCL. If you are interested in participating, please contact Erin Pilkington at EPilkington@PillarAdvocates.com or 908-698-1038.

Please let the CLL Society know if you are chosen to participate by emailing support@cllsociety.org with “I was chosen!” in the subject line. Thank you! The details of the interview are fully independent on the CLL Society and our announcement of this opportunity should not be construed as an endorsement.

Expert Access Is Open!

Expert Access, our free online second opinion program is now open. If you live in the USA and want a second look at your CLL from a world expert, you are welcome to apply here. Even if you have used the program before, may reapply if you need new clinical advice.

 

CLL Society Sponsored Support Group Meetings Coming Up!

The Orange County CLL Support Group – July 9 @ 7:00 pm

Montreal CLL Patient Support Group – Groupe de soutien de la LLC de Montréal – July 10 @ 6:00 pm

Salt Lake City CLL Support Group – July 10 @ 7:00 pm

Long Island CLL Support Group – July 11 @ 6:45 pm

Houston-area CLL Support Group – July 13 @ 10:00 am

Central Massachusetts CLL Support Group – July 13 @ 12:30 pm

Seattle-Olympic Peninsula CLL Support Group – July 13 @ 1:00 pm

Philadelphia CLL Patient Support Group – July 13 @ 2:00 pm

Atlanta Metro CLL Support Group – July 14 @ 3:00 pm

New York City CLL Support Group – July 14 @ 3:00 pm

City of Hope CLL Support Group – July 15 @ 7:00 pm

Chicago CLL Support Group – July 16 @ 7:00 pm

Denver CLL Patient Support Group – July 17 @ 7:00 pm

Twin Cities CLL Support Group – July 18 @ 7:00 pm

New Jersey CLL Patient Support Group – July 18 @ 7:00 pm

Charlotte CLL Patient Support Group – July 20 @ 10:00 am

Central Florida CLL Support Group – July 20 @ 10:30 am

West LA CLL Support Group – July 20 @ 11:00 am

Oberlin, OH, CLL Patient Support Group – July 20 @ 1:00 pm

Washington DC-area CLL Patient Support Group – July 20 @ 3:00 pm

San Francisco area CLL Patient Support Group – July 21 @ 4:00 pm

Special Announcement: the San Diego and Orlando CLL Society Support and Education Meetings have been canceled for the month of July.

Visit our website for the most up-to-date information on all CLL Society support group meetings.

Leukemia & Lymphoma Society Sponsored Meetings

The CLL Information & Support Group of Rockland County NY – July 11 @ 7:00 pm

Lymphoma Research Foundation Sponsored Meetings

Thursday, August 22, 2019 from 6:00 PM – 8:30 PM in Chicago, IL

The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the The Westin Chicago River North featuring Reem Karmali, MD, MS from Northwestern Medicine. Find out more information and register here.