The annual ASH meeting is not just an opportunity to meet with the top researchers, but also a chance to catch up with friends in the nonprofit space helping those with blood cancers.
Lorna Warwick is the CEO of the umbrella organization, Lymphoma Coalition or LC. As CLL/SLL is both a leukemia and a lymphoma, we are a member and participate in their surveys and educational efforts.
- Globally not everyone has access to the best information about their type of lymphoma including about CLL, let alone access to the best possible treatments.
- LC provides a list of big and small nonprofits across the world that provide services and information to patients.
- LC does a large survey annually of its member organizations to look at the unmet needs for lymphoma patients.
- Their projects include looking at fatigue (see here for more information on cancer related fatigue in CLL) and the place for biosimilars (see here for our pharmacist’s take on this important topic.)
While the CLL Society works hard to meet the unmet needs of the chronic lymphocytic community, we can’t be everything to everyone, especially to those outside of the USA and Canada, so please check LC for the services their members offer.
Here is my short interview with my friend and fellow Canadian, Lorna Warwick.