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Dear Friends and Supporters of the CLL Society,
New this week!
Lorna Warwick is the CEO of the Lymphoma Coalition. At ASH 2018, we had two discussions, the first about the important work of her international nonprofit , the second about the research they were presenting at ASH 2018 on the value of being an informed patient , a familiar theme to our readers.
Giora Sharf is a CML friend and advocate who lives in Israel who interviewed Dr. Koffman about his medical journey and the founding of the CLL Society last December in San Diego at ASH 2018. We are happy to share the update that Dr. Koffman remains in a deep remission now 16 months post receiving his living drug. Here is Dr. Koffman’s interview with Giora .
The Cancer Moonshot lead by VP Joe Biden started with such promise, but it is on hold now due to VP Biden presidential aspirations presenting ethical concerns. Read Glenn Sabin’s interactions and opinions with the Moonshot team here .
We invite you to attend our CLL Society Webinar
We are All Going to Die – Being Prepared
Join this CLL Society webinar to address the fears about dying that are normal in the months after diagnosis, how to obtain help with difficult decisions or symptoms from palliative care, and how end of life care is enhanced with hospice. Register here .
If you missed the CLL Society Webinar, “ A Psychological Perspective: Dealing with the CLL Emotional Roller Coaster ,” you can find the webinar recording and presentation slides linked here for this important topic.
Paid Market Research Opportunities
The CLL Society is pleased to inform you of the opportunity to participate in CLL-related marketing surveys. If interested, you can learn more here .
Expert Access Is Open!
Expert Access, our free online second opinion program is now open. If you live in the USA and want a second look at your CLL from a world expert, you are welcome to apply here . Even if you have used the program before, you may reapply if you need new clinical advice.
New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
Ft. Lauderdale / Miami, FL
Fort Worth, TX
Greater Lehigh Valley, PA
Las Vegas, NV
Palm Springs / Coachella Valley, CA
Santa Barbara/Lompoc, CA
St. Louis, MO
Seattle and All Points North
Toronto, ON Canada
Pan Foundation has opened its co-payment assistance program for CLL. To view more information or manage your account, log in to FundFinder.
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Learn more about this new assistance program.
Do you shop at Amazon?
Please use smile.amazon.comfor your shopping and a percentage of your purchases today and going forward will be donated to the CLL Society when you select us as your preferred charity. It costs you nothing and helps us.
CLL Society Sponsored Support Group Meetings Coming Up!
San Diego CLL Society Support and Education Meeting – August 7 @ 4:00 pm
Long Island CLL Support Group – August 8 @ 6:45 pm
Central Massachusetts CLL Support Group – August 10 @ 12:30 pm
Seattle-Olympic Peninsula CLL Support Group – August 10 @ 1:00 pm
Orlando CLL Support Group – August 10 @ 2:00 pm
Philadelphia CLL Patient Support Group – August 10 @ 2:00 pm
Atlanta Metro CLL Support Group – August 11 @ 3:00 pm
The Orange County CLL Support Group – August 13 @ 7:00 pm
Houston-area CLL Support Group – August 13 @ 7:00 pm
Portland CLL Support Group – August 14 @ 6:00 pm
Salt Lake City CLL Support Group – August 14 @ 7:00 pm
Milwaukee CLL Support Group – August 15 @ 6:00 pm
Denver CLL Patient Support Group – August 15 @ 7:00 pm
Twin Cities CLL Support Group – August 15 @ 7:00 pm
New Jersey CLL Patient Support Group – August 15 @ 7:00 pm
Western North Carolina CLL Patient Support Group – August 17 @ 10:00 am
Central Florida CLL Support Group – August 17 @ 10:30 am
West LA CLL Support Group – August 17 @ 11:00 am
DFW – Dallas Area CLL Patient Support Group – August 18 @ 2:00 pm
New York City CLL Support Group – August 18 @ 3:00 pm
San Francisco-area CLL Patient Support Group – August 18 @ 4:00 pm
City of Hope CLL Support Group – August 19 @ 7:00 pm
SPECIAL ANNOUNCEMENT: The Washington DC Support Group will not be meeting in August.
Visit our website for the most up-to-date information on all CLL Society support group meetings.
Lymphoma Research Foundation Meetings
Thursday, August 22, 2019 from 6:00 PM – 8:30 PM in Chicago, IL
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the The Westin Chicago River North featuring Reem Karmali, MD, MS from Northwestern Medicine. Find out more information and register here.