Dear Friends and Supporters of the CLL Society,
New this week!
We need to know the total cost of therapies, but it is remarkably hard information to get. Dr. Nabhan researched the cost of venetoclax versus chemotherapy or chemo-immunotherapy. Watch the interview.
Dr. Nabhan left direct patient care and interventional research to see what other questions he could answer and what other ways he might help. In some ways, I have done the same, so this ASH interview was personal – Dr. Koffman.
World Lymphoma Awareness Day
CLL Society 2019 Website Survey
We care about what you think. Please let us know what you like and how we can improve the CLL Society’s website and other services by going here.
Last Chance to Sign Up for Today’s Webinar
Today at 10 AM PDT/ 1 PM EDT, Dr. Ed Ratner helps us “Be Prepared” If you haven’t already registered it’s not too late. Go to: https://cllsociety.org/being-prepared/. You will be glad you did.
If you haven’t already completed the CLL Society’s Tribune survey about end of life planning and palliative care, you can participate here.
Expert Access Is Open!
Expert Access, our free online second opinion program is open. If you live in the USA and want a second look at your CLL from a world expert, you are welcome to apply here. Even if you have used the program before, you may reapply if you need new clinical advice.
New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
Ft. Lauderdale / Miami, FL
Fort Worth, TX
Greater Lehigh Valley, PA
Las Vegas, NV
Palm Springs / Coachella Valley, CA
Santa Barbara/Lompoc, CA
St. Louis, MO
Seattle and All Points North
Toronto, ON Canada
Pan Foundation has opened its co-payment assistance program for CLL. To view more information or manage your account, log in to FundFinder.
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Learn more about this new assistance program.
Do you shop at Amazon?
Please use smile.amazon.comfor your shopping and a percentage of your purchases today and going forward will be donated to the CLL Society when you select us as your preferred charity. It costs you nothing and helps us.
CLL Society Sponsored Support Group Meetings Coming Up!
The Orange County CLL Support Group – September 10 @ 7:00 pm
Portland CLL Support Group – September 11 @ 6:00 pm
Salt Lake City CLL Support Group – September 11 @ 7:00 pm
Long Island CLL Support Group – September 12 @ 6:45 pm
Houston-area CLL Support Group – September 14 @ 10:00 am
West LA CLL Support Group – September 14 @ 11:00 am
Central Massachusetts CLL Support Group – September 14 @ 12:30 pm
Seattle-Olympic Peninsula CLL Support Group – September 14 @ 1:00 pm
Orlando CLL Support Group – September 14 @ 2:00 pm
Philadelphia CLL Patient Support Group – September 14 @ 2:00 pm
Atlanta Metro CLL Support Group – September 15 @ 3:00 pm
DFW – Dallas Area CLL Patient Support Group – September 15 @ 3:00 pm
San Francisco area CLL Patient Support Group – September 15 @ 4:00 pm
City of Hope CLL Support Group – September 16 @ 7:00 pm
Chicago CLL Support Group – September 17 @ 7:00 pm
Milwaukee CLL Support Group – September 19 @ 6:00 pm
Twin Cities CLL Support Group – September 19 @ 7:00 pm
New Jersey CLL Patient Support Group – September 19 @ 7:00 pm
Denver CLL Patient Support Group – September 19 @ 7:00 pm
Western North Carolina CLL Patient Support Group – September 21 @ 10:00 am
Central Florida CLL Support Group – September 21 @ 10:30 am
Oberlin, OH, CLL Patient Support Group – September 21 @ 1:00 pm
Washington DC-area CLL Patient Support Group – September 21 @ 3:00 pm
Visit our website for the most up-to-date information on all CLL Society support group meetings.
Lymphoma Research Foundation Meetings
Tuesday, September 17, 2019 from 6:00 PM – 8:30 PM in Denver, CO
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the DoubleTree by Hilton Denver featuring Manali Kamdar, MD and Bradley Haverkos, MD, MPH from University of Colorado School of Medicine. Find out more information and register here.
Leukemia & Lymphoma Society Meetings
Saturday, September 21st from 8:00 AM – 3:00 PM in Milwaukee, WI
LLS invites you to attend Wisconsin Blood Cancer Conference being held at the Hyatt Regency Milwaukee. This event is free but registration is required. Find out more information and register here.
Patient Empowerment Network
Tuesday, September 17 at 11:00 AM Pacific (2:00 PM Eastern, 1:00 PM Central)
When searching for chronic lymphocytic leukemia (CLL) information online, how do you know what’s credible? In this webinar titled, Fact or Fiction? CLL Treatment & Side Effects, Dr. Javier Pinilla-Ibarz will review current CLL treatments, emerging research and common side effects to help you decipher fact from fiction. Learn more and register to attend.