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Dear Friends and Supporters of the CLL Society,
New this week!
The trial that compared FCR to ibrutinib and rituximab for treatment naïve, non 17p deleted patients was the biggest news at ASH 2018. Here is a fresh perspective from Dr. Kay, one of the researchers. Watch the interview.
At ASH 2018, Dr. Roeker discusses the early data from the CORE study that gives us a glimpse at why it is important to have a CLL specialist on your team. Watch the interview.
Remember that September is Blood Cancer Awareness Month around the globe! Our fellow blood cancer charities are all working hard to raise awareness. Be sure to follow #FightBloodCancer and #BloodCancerAwarenessMonth!
Please support the CLL Society and others who help those with blood cancer live longer and stronger lives.
Patients and Caregivers Needed for Survey
Liberating Surveys is looking for a total of 27 CLL patients and caregivers to engage in a CLL market research study. Preference will be given to those who can physically attend one of the following sessions:
October 7: New York, NY
October 8: Dallas, TX
October 9: Los Angeles, CA
Accommodations may be made for patients and caregivers who are interested but unable to attend in person.
Each participant selected will receive a $200 Amazon gift card in recognition of their time and travel.
Click here for further details and to apply to participate.
CLL Society 2019 Website Survey
We care about what you think. Please let us know what you like and how we can improve the CLL Society’s website and other services by going here.
Expert Access Is Open!
Expert Access, our free online second opinion program is open. If you live in the USA and want a second look at your CLL from a world expert, you are welcome to apply here. Even if you have used the program before, you may reapply if you need new clinical advice.
New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
Ft. Lauderdale / Miami, FL
Fort Worth, TX
Greater Lehigh Valley, PA
Las Vegas, NV
Palm Springs / Coachella Valley, CA
Santa Barbara/Lompoc, CA
St. Louis, MO
Seattle and All Points North
Toronto, ON Canada
Pan Foundation has opened its co-payment assistance program for CLL. To view more information or manage your account, log in to FundFinder.
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Learn more about this new assistance program.
Do you shop at Amazon?
Please use smile.amazon.comfor your shopping and a percentage of your purchases today and going forward will be donated to the CLL Society when you select us as your preferred charity. It costs you nothing and helps us.
CLL Society Sponsored Support Group Meetings Coming Up!
Chicago CLL Support Group – September 17 @ 7:00 pm
Milwaukee CLL Support Group – September 19 @ 6:00 pm
Twin Cities CLL Support Group – September 19 @ 7:00 pm
New Jersey CLL Patient Support Group – September 19 @ 7:00 pm
Denver CLL Patient Support Group – September 19 @ 7:00 pm
Western North Carolina CLL Patient Support Group – September 21 @ 10:00 am
Central Florida CLL Support Group – September 21 @ 10:30 am
Oberlin, OH, CLL Patient Support Group – September 21 @ 1:00 pm
Washington DC-area CLL Patient Support Group – September 21 @ 3:00 pm
Northeast Ohio CLL Patient Support Group – September 24 @ 7:00 pm
New Orleans and Surrounding Areas CLL Support Group – September 25 @ 6:30 pm
Rochester NY CLL Support Group – September 25 @ 7:00 pm
Nashville CLL Patient Support Group – September 28 @ 12:00 pm
Boston CLL Patient Support Group – September 28 @ 1:00 pm
Visit our website for the most up-to-date information on all CLL Society support group meetings.
CLL Patient and Caregiver Educational Forum, Salt Lake City, UT
Saturday November 9, 2019, 7:30 AM to 12:00 PM at Huntsman Cancer Institute
In partnership with the Huntsman Cancer Institute, the CLL Society invites you to attend our informational CLL Patient Educational Forum. Featured speakers will present the basics of CLL diagnosis, early management, clinical trials, treatment options, patient perspectives, and tips to become an effective self-advocate.
Please see additional information and registration here: https://cllsociety.org/patient-education-forums/
Lymphoma Research Foundation Meetings
Tuesday, September 17, 2019 from 6:00 PM – 8:30 PM in Denver, CO
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the DoubleTree by Hilton Denver featuring Manali Kamdar, MD and Bradley Haverkos, MD, MPH from University of Colorado School of Medicine. Find out more information and register here.
Leukemia & Lymphoma Society Meetings
Wednesday, September 18, 2019, at 12:00 NOON EST
A FREE Telephone Support Program for Patients and Their Families/ Caregivers/ Loved Ones. CAR T-Cell Therapy Lunch & Learn presented by the National Bone Marrow Transplant Link, www.nbmtlink.org. Find out more information and register here.
Saturday, September 21st from 8:00 AM – 3:00 PM in Milwaukee, WI
LLS invites you to attend Wisconsin Blood Cancer Conference being held at the Hyatt Regency Milwaukee. This event is free but registration is required. Find out more information and register here.
Saturday, October 5th from 9:00 AM – 3:00 PM in New York, NY
LLS invites you to attend New York / New Jersey Blood Cancer Conference being held at the New York Marriott Marquis. This event is free but registration is required. Find out more information and register here.
Patient Empowerment Network
Tuesday, September 17 at 11:00 AM Pacific (2:00 PM Eastern, 1:00 PM Central)
When searching for chronic lymphocytic leukemia (CLL) information online, how do you know what’s credible? In this webinar titled, Fact or Fiction? CLL Treatment & Side Effects, Dr. Javier Pinilla-Ibarz will review current CLL treatments, emerging research and common side effects to help you decipher fact from fiction. Learn more and register to attend.