June 30, 2020
Dear Friends and Supporters of the CLL Society,
We invite you to attend our CLL Society Webinar
Tuesday, Sep 10, 2019, at 10:00 AM PDT / 1:00 PM EDT
Planning Ahead: Being Prepared for End of Life
Join this CLL Society webinar to address the fears about dying that are normal in the months after diagnosis, how to obtain help with difficult decisions or symptoms from palliative care, and how end of life care is enhanced with hospice. Register here.
End of life discussions and planning can be difficult, but they are important for oneself and one’s family to have in place before they are needed. Review basic information and resources in the Planning Ahead section on advance directives and hospice care. Information and resources about palliative care are also included, which can be administered at any time in a person’s treatment and is not necessarily associated with end of life.
If you haven’t already completed the CLL Society’s Tribune survey about end of life planning and palliative care, you can participate here.
New this week!
New drug approvals are too lengthy and expensive. At ASH 2018, Dr. Maddali discusses how this is changing.
At the EHA (European Hematology Assoc) Annual Congress in Amsterdam in June 2019, Dr. Koffman was interviewed by EHA TV for their educational purposes concerning his CAR-T experience.
CLL Society 2019 Website Survey
We care about what you think. Please let us know what you like and how we can improve the CLL Society’s website and other services by going here.
Expert Access Is Open!
Expert Access, our free online second opinion program is open. If you live in the USA and want a second look at your CLL from a world expert, you are welcome to apply here. Even if you have used the program before, you may reapply if you need new clinical advice.
New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
Ft. Lauderdale / Miami, FL
Fort Worth, TX
Buffalo, NY
Cincinnati, OH
Greater Lehigh Valley, PA
Greensboro, NC
Hartford, CT
Las Vegas, NV
Palm Springs / Coachella Valley, CA
Phoenix, AZ
Raleigh/Durham, NC
Sacramento, CA
Santa Barbara/Lompoc, CA
Sarasota, FL
St. Louis, MO
Seattle and All Points North
Toronto, ON Canada
Tucson, AZ
FundFinder
Pan Foundation has opened its co-payment assistance program for CLL. To view more information or manage your account, log in to FundFinder.
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Learn more about this new assistance program.
Do you shop at Amazon?
Please use smile.amazon.comfor your shopping and a percentage of your purchases today and going forward will be donated to the CLL Society when you select us as your preferred charity. It costs you nothing and helps us.
CLL Society Sponsored Support Group Meetings Coming Up!
San Diego CLL Society Support and Education Meeting – September 4 @ 4:00 pm
New York City CLL Support Group – September 8 @ 3:00 pm
The Orange County CLL Support Group – September 10 @ 7:00 pm
Portland CLL Support Group – September 11 @ 6:00 pm
Salt Lake City CLL Support Group – September 11 @ 7:00 pm
Long Island CLL Support Group – September 12 @ 6:45 pm
Houston-area CLL Support Group – September 14 @ 10:00 am
Central Massachusetts CLL Support Group – September 14 @ 12:30 pm
Seattle-Olympic Peninsula CLL Support Group – September 14 @ 1:00 pm
Orlando CLL Support Group – September 14 @ 2:00 pm
Philadelphia CLL Patient Support Group – September 14 @ 2:00 pm
Atlanta Metro CLL Support Group – September 15 @ 3:00 pm
San Francisco area CLL Patient Support Group – September 15 @ 4:00 pm
City of Hope CLL Support Group – September 16 @ 7:00 pm
Visit our website for the most up-to-date information on all CLL Society support group meetings.
Lymphoma Research Foundation Meetings
Wednesday, September 4, 2019 from 6:00 PM – 8:30 PM in St. Louis, MO
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Embassy Suites by Hilton St. Louis Downtown featuring Neha Mehta-Shah, MD from Washington University School of Medicine in St. Louis. Find out more information and register here.
Leukemia & Lymphoma Society Meetings
Leukemia and Lymphoma Society – Tucker – Family Support Group – September 3 @ 7:00 pm
The CLL Information & Support Group of Rockland County NY – September 5 @ 7:00 pm
Saturday, September 7th from 9:00 AM – 3:00 PM in Atlanta, GA
LLS invites you to attend Georgia Blood Cancer Conference being held at The Renaissance Atlanta Waverly Hotel. This event is free but registration is required. Find out more information and register here.
Patient Empowerment Network
Tuesday, September 17 at 11:00 AM Pacific (2:00 PM Eastern, 1:00 PM Central)
When searching for chronic lymphocytic leukemia (CLL) information online, how do you know what’s credible? In this webinar titled, Fact or Fiction? CLL Treatment & Side Effects, Dr. Javier Pinilla-Ibarz will review current CLL treatments, emerging research and common side effects to help you decipher fact from fiction. Learn more and register to attend.
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