Dear Friends and Supporters of the CLL Society,
New this week!
Dr. Wiestner of the NIH discusses the importance of acalabrutinib’s ability to “occupy” and inhibit BTK to control CLL. Watch the interview .
The large trial that showed that ibrutinib plus rituximab was superior to FCR for frontline treatment of younger CLL patients was arguably the biggest news at ASH 2018 and has been the research news that we covered most deeply and broadly. This week, Dr Neil Kay, a co-investigator adds his perspective in our ASH 2018 interview. Watch the interview .
The CLL Society Tribune has been Released!
Our Third 2019 issue of The CLL Society Tribune has just been released! This quarter’s issue brings you the latest news, answers to your questions from our Medical Advisory Board, research, stories, and creative efforts shared by patients and caregivers.
Correction Notice : If you had opened the Tribune Newsletter email during the first 90 minutes after it was sent, you would have been taken to our second issue instead of our third. That was resolved quickly!
Also, the title and author of our fourth Living Well With CLL article was incorrect. It should have read Waterfalls of Grace by Mary B. McAllister.
We invite you to attend our CLL Society Webinar
Veterans with CLL: How to Get the Benefits and Care You Deserve
This CLL Society webinar will provide perspectives from a VA physician and a Veteran with a CLL diagnosis. Register here .
Patients and Caregivers Needed for Survey
Liberating Surveys is looking for a total of 27 CLL patients and/ or caregivers to engage in a CLL market research study. Preference will be given to those who can physically attend one of the following sessions:
October 7: New York, NY
October 8: Dallas, TX
October 9: Los Angeles, CA
Accommodations may be made for patients and caregivers who are interested but unable to attend in person.
Each participant selected will receive a $200 Amazon gift card in recognition of their time and travel.
Click here for further details and to apply to participate.
CLL Society 2019 Website Survey
We care about what you think. Please let us know what you like and how we can improve the CLL Society’s website and other services by going here .
Expert Access Is Open!
Expert Access, our free online second opinion program is open. If you live in the USA and want a second look at your CLL from a world expert, you are welcome to apply here . Even if you have used the program before, you may reapply if you need new clinical advice.
New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
Ft. Lauderdale / Miami, FL
Fort Worth, TX
Greater Lehigh Valley, PA
Las Vegas, NV
Palm Springs / Coachella Valley, CA
Santa Barbara/Lompoc, CA
St. Louis, MO
Seattle and All Points North
Toronto, ON Canada
Pan Foundation has opened its co-payment assistance program for CLL. To view more information or manage your account, log in to FundFinder.
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Learn more about this new assistance program.
Do you shop at Amazon?
Please use smile.amazon.comfor your shopping and a percentage of your purchases today and going forward will be donated to the CLL Society when you select us as your preferred charity. It costs you nothing and helps us.
Portland CLL Support Group – October 1 @ 6:00 pm
San Diego CLL Society Support and Education Meeting – October 2 @ 4:00 pm
The CLL Support Group of Albany (NY) – October 6 @ 12:00 pm
The Orange County CLL Support Group – October 8 @ 7:00 pm
Salt Lake City CLL Support Group – October 9 @ 7:00 pm
Long Island CLL Support Group – October 10 @ 6:45 pm
Central Massachusetts CLL Support Group – October 12 @ 12:30 pm
Seattle-Olympic Peninsula CLL Support Group – October 12 @ 1:00 pm
Orlando CLL Support Group – October 12 @ 2:00 pm
Philadelphia CLL Patient Support Group – October 12 @ 2:00 pm
Atlanta Metro CLL Support Group – October 13 @ 3:00 pm
New York City CLL Support Group – October 13 @ 3:00 pm
SPECIAL ANNOUNCEMENT: The Houston CLL Society Support Group will not be meeting in October.
Visit our website for the most up-to-date information on all CLL Society support group meetings.
CLL Patient and Caregiver Educational Forum, Salt Lake City, UT
Saturday November 9, 2019, 7:30 AM to 12:00 PM at Huntsman Cancer Institute
In partnership with the Huntsman Cancer Institute, the CLL Society invites you to attend our informational CLL Patient Educational Forum. Featured speakers will present the basics of CLL diagnosis, early management, clinical trials, treatment options, patient perspectives, and tips to become an effective self-advocate.
Please see additional information and registration here: https://cllsociety.org/patient-education-forums/
The Leukemia & Lymphoma Society of Canada
Montreal CLL/SLL Support Group – Groupe de soutien de la LLC de Montréal – October 9 @ 6:00 pm
Lymphoma Research Foundation Meetings
Wednesday, October 2, 2019 from 6:00 PM – 8:30 PM in Basking Ridge, NJ
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Courtyard by Marriott Basking Ridge featuring Anita Kumar, MD from Memorial Sloan Kettering Basking Ridge. Find out more information and register here .
Leukemia & Lymphoma Society Meetings
Leukemia and Lymphoma Society – Tucker – Family Support Group – October 1 @ 7:00 pm
The CLL Information & Support Group of Rockland County NY – October 3 @ 7:00 pm
Saturday, October 5th from 9:00 AM – 3:00 PM in New York, NY
LLS invites you to attend New York / New Jersey Blood Cancer Conference being held at the New York Marriott Marquis. This event is free but registration is required. Find out more information and register here .
IU Simon Cancer Center
CLL and Indolent Blood Cancers Support Group – October 7 @ 6:00 pm