Dear Friends and Supporters of the CLL Society,
New this week!
We have been asked to provide some advice on vaccines so we have provided links to reliable resources that apply to immune compromised patients such as us.
The legendary Dr. Rai shares his thoughts on the illusiveness of cure in CLL when he and Dr. Koffman talked at the ERIC meeting in Barcelona. Watch the interview .
Dr. Ghia, the president of ERIC, discusses his vision for this 1st International meeting of the European Research Initiative on CLL (ERIC).
Accurate testing before treating is critical in CLL and no one gets this more than Dr. Paolo Ghia, president of ERIC. Watch the interview .
Dr. Brian Koffman shares his good news and his reaction in his latest blog post here.
We invite you to attend our CLL Society Webinar
Veterans with CLL: How to Get the Benefits and Care You Deserve
This CLL Society webinar will provide perspectives from a VA physician and a Veteran with a CLL diagnosis. Register here .
Patients and Caregivers Needed for Survey
Liberating Surveys is looking for a total of 27 CLL patients and/ or caregivers to engage in a CLL market research study. Preference will be given to those who can physically attend one of the following sessions:
October 28: Manchester, UK
October 29: London, UK
Accommodations may be made for patients and caregivers who are interested but unable to attend in person.
Each participant selected will receive a $200 Amazon gift card in recognition of their time and travel.
Go here for further details and to apply to participate in the UK.
CLL Society 2019 Website Survey
We care about what you think. Please let us know what you like and how we can improve the CLL Society’s website and other services by going here .
Expert Access Is Open!
Expert Access, our free online second opinion program is open. If you live in the USA and want a second look at your CLL from a world expert, you are welcome to apply here . Even if you have used the program before, you may reapply if you need new clinical advice.
New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
Ft. Lauderdale / Miami, FL
Fort Worth, TX
Greater Lehigh Valley, PA
Las Vegas, NV
Palm Springs / Coachella Valley, CA
Santa Barbara/Lompoc, CA
St. Louis, MO
Seattle and All Points North
Toronto, ON Canada
Pan Foundation has opened its co-payment assistance program for CLL. To view more information or manage your account, log in to FundFinder.
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Learn more about this new assistance program.
Do you shop at Amazon?
Please use smile.amazon.comfor your shopping and a percentage of your purchases today and going forward will be donated to the CLL Society when you select us as your preferred charity. It costs you nothing and helps us.
CLL Society Sponsored Support Group Meetings Coming Up!
Northeast Ohio CLL Patient Support Group – October 22 @ 7:00 pm
Rochester NY CLL Support Group – October 23 @ 7:00 pm
Boston CLL Patient Support Group – October 26 @ 1:00 pm
New Orleans and Surrounding Areas CLL Support Group – October 30 @ 6:30 pm
SPECIAL ANNOUNCEMENT: The Houston CLL Society Support Group will not be meeting in October.
Visit our website for the most up-to-date information on all CLL Society support group meetings.
Ohio State University Comprehensive Cancer Center
Monday, October 28, 2019 from 6:00 PM – 7:30 PM (live stream available)
JamesCare for Life Presents: Ask the Expert: Treatment-Associated Adverse Effects and Supportive Care for the CLL Patient at the The James Cancer Hospital and Solove Research Institute – Ground Floor, B050. Find out more information and register here.
CLL Patient and Caregiver Educational Forum, Salt Lake City, UT
Saturday November 9, 2019, 7:30 AM to 12:00 PM at Huntsman Cancer Institute
In partnership with the Huntsman Cancer Institute, the CLL Society invites you to attend our informational CLL Patient Educational Forum. Featured speakers will present the basics of CLL diagnosis, early management, clinical trials, treatment options, patient perspectives, and tips to become an effective self-advocate.
Please see additional information and registration here: https://cllsociety.org/patient-education-forums/
Lymphoma Research Foundation Meetings
Monday, October 28, 2019 from 6:00 PM – 8:30 PM in Boston, MA
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Sheraton Boston Hotel featuring Jacob Soumerai, MD from Massachusetts General Hospital Cancer Center. Find out more information and register here.
Leukemia & Lymphoma Society Meetings
Tuesday, October 29, 2019 from 6:00 PM to 8:00 PM in Charlotte, NC
LLS invites you to attend this FREE Patient Education Program: Living Well with CLL: diagnosis, treatment and support held at Duke Mansion, Charlotte, NC, featuring Alan Skarbnik, MD from Novant Health, and Hannah Smith, MSW, LCSW, OSW-C from Levine Cancer Institute. Dinner will be provided to registered attendees. This event is free but registration is required. Find out more information and register here.
Saturday, November 2nd from 9:00 AM – 3:00 PM in Mars, PA
LLS invites you to attend New York / New Jersey Blood Cancer Conference being held at the DoubleTree by Hilton Cranberry. This event is free but registration is required. Find out more information and register here.
IU Simon Cancer Center
CLL and Indolent Blood Cancers Support Group – November 4 @ 6:00 pm