October 29, 2019

Dear Friends and Supporters of the CLL Society,

New this week!

Dr. Farrukh Awan has done research on the cardiac side effects that have been increasingly reported with ibrutinib. He gives us his patient friendly overview here.

From ERIC, Dr. John Seymour talks about Monoclonal B-cell Lymphocytosis (MBL), a precursor of CLL. Watch the interview.

Arguably nothing in CLL or any major illness is more important than the doctor/patient relation, so please enjoy this research from ERIC 2018 by Dr. Aliki Xochelli on both sides of the communication. Watch the interview.

Not everyone is lucky with their CART-T therapy. Cherie Rineker passed last week. Her sad story is at: Another loss.

We invite you to attend our CLL Society Webinar

Tuesday, Nov 5, 2019, at 10:00 AM PDT / 1:00 PM EDT

Veterans with CLL: How to Get the Benefits and Care You Deserve

This CLL Society webinar will provide perspectives from a VA physician and a Veteran with a CLL diagnosis. Register here.

Patients and Caregivers Needed for Survey

Liberating Surveys is looking for a total of 27 CLL patients and/ or caregivers to engage in a CLL market research study. Preference will be given to those who can physically attend one of the following sessions:

October 29: London, UK

Accommodations may be made for patients and caregivers who are interested but unable to attend in person.

Each participant selected will receive a $200 Amazon gift card in recognition of their time and travel.

Go here for further details and to apply to participate in the UK.

CLL Society 2019 Website Survey

We care about what you think. Please let us know what you like and how we can improve the CLL Society’s website and other services by going here.

Our CLL Experts Will See You Online!

Would you like a second look at your CLL? A generous grant funds our Expert Access Program, allowing you to see a world-renowned CLL physician- at no cost- for a second opinion, using our easy online platform. This program is open to all U.S. patients with a CLL diagnosis, and you are welcome to apply here. If you have used the program before, you may reapply if you need new clinical advice.

 

CLL Society Sponsored Support Group Meetings Coming Up!

New Orleans and Surrounding Areas CLL Support Group – October 30 @ 6:30 pm

Portland CLL Support Group – November 5 @ 6:00 pm

San Diego CLL Society Support and Education Meeting – November 6 @ 4:00 pm

Houston-area CLL Support Group – November 9 @ 10:00 am

Central Massachusetts CLL Support Group – November 9 @ 12:30 pm

Seattle-Olympic Peninsula CLL Support Group – November 9 @ 1:00 pm

Orlando CLL Support Group – November 9 @ 2:00 pm

Philadelphia CLL Patient Support Group – November 9 @ 2:00 pm

Atlanta Metro CLL Support Group – November 10 @ 3:00 pm

New York City CLL Support Group – November 10 @ 3:00 pm

Toronto CLL Support Group – November 11 @ 7:00 pm

Visit our website for the most up-to-date information on all CLL Society support group meetings.

CLL Patient and Caregiver Educational Forum, Salt Lake City, UT

Saturday November 9, 2019, 7:30 AM to 12:00 PM at Huntsman Cancer Institute

In partnership with the Huntsman Cancer Institute, the CLL Society invites you to attend our informational CLL Patient Educational Forum. Featured speakers will present the basics of CLL diagnosis, early management, clinical trials, treatment options, patient perspectives, and tips to become an effective self-advocate.

Please see additional information and registration here: https://cllsociety.org/patient-education-forums/

Lymphoma Research Foundation Meetings

Wednesday, October 30, 2019 from 3:00 PM EDT • 2:00 PM CDT • 1:00 PM MDT • 12:00 PM PDT

The Lymphoma Research Foundation invites you to attend a FREE webinar: Update on Chronic Lymphocytic Leukemia (CLL) and Small Lymphocytic Lymphoma (SLL) featuring Dr. Matthew Davids from Center for Chronic Lymphocytic Leukemia. Find out more information and register here.

Leukemia & Lymphoma Society Meetings

Tuesday, October 29, 2019 from 6:00 PM to 8:00 PM in Charlotte, NC

LLS invites you to attend this FREE Patient Education Program: Living Well with CLL: diagnosis, treatment and support held at Duke Mansion, Charlotte, NC, featuring Alan Skarbnik, MD from Novant Health, and Hannah Smith, MSW, LCSW, OSW-C from Levine Cancer Institute. Dinner will be provided to registered attendees. This event is free but registration is required. Find out more information and register here.

Saturday, November 2nd from 9:00 AM – 3:00 PM in Mars, PA

LLS invites you to attend New York / New Jersey Blood Cancer Conference being held at the DoubleTree by Hilton Cranberry. This event is free but registration is required. Find out more information and register here.

Thursday, November 7, 2019 from 6:00 PM to 8:30 PM in Boston, MA – For Physicians

Share with your CLL Doctor: If you are in the greater Boston area, please share this CLL educational opportunity with your doctor. LLS invites your physician to attend Treatment of CLL and CML in a Rapidly Evolving Therapeutic Landscape being held at the Boston Marriott Copley Place, featuring Jon E. Arnason, MD from Beth Israel Deaconess Medical Center and Anita Kumar, MD, MS from Tufts Medical Center. Find out more information and register here.

Leukemia and Lymphoma Society – Tucker – Family Support Group – November 5 @ 7:00 pm

The CLL Information & Support Group of Rockland County NY – November 7 @ 7:00 pm

IU Simon Cancer Center

CLL and Indolent Blood Cancers Support Group – November 4 @ 6:00 pm