December 3, 2019
Dear Friends and Supporters of the CLL Society,
New this week!
The warriors against CLL just got a new arrow in their quiver. To read the CLL Society’s Official Statement on the FDA’s approval of acalabrutinib, please read here .
David Maloney is world expert in CAR-T therapy and was one of Brian Koffman’s doctors when he got his cells in Seattle last year. Please enjoy their deeper dive into CAR-T from their conversation at EHA in Amsterdam.
There is a disagreement about the role of chemo-immunotherapy for treating CLL. In this interview with Dr. Davids from EHA 2019 , he talks about adding ibrutinib to FCR to improve outcomes.
Have you started your holiday shopping?
Don’t forget you can support CLL Society at no cost to you! How? Simply type smile.amazon.com into your browser and select CLL Society as your charity. Shop like you normally do, and Amazon will automatically donate a portion of the purchase price to CLL Society.
These small amounts add up, and we are so grateful for every dollar, which will help us provide important education and services to the CLL patient community.
Of course, you can always make a direct donation as well.
For those already donating through Amazon Smile, THANK YOU!
Watch our latest CLL Society Webinar Archive
If you missed the CLL Society Webinar, “Veterans with CLL: How to Get the Benefits and Care You Deserve,” you can find the webinar recording and presentation slides linked here for this important topic.
Test Before Treat™
Test Before Treat™ CLL Experts, Doctors Mato, Stilgenbauer, Furman, Jain, and Davids endorse Test Before Treat™. Find out what you need to know before every treatment.
As part of our campaign for Test Before Treat™ to make all patients aware of the importance of testing before treatment, we are looking for your statement on how your testing before treatment, or sadly, the lack thereof, influenced your CLL management. Please drop us one or two lines at support@cllsociety.org .
Patients and Caregivers Needed for Surveys
Pillar Patient Advocates has a paid ($150) opportunity for 24 patients of varying stages of CLL, who have been diagnosed within the past three years. Find out more here .
Focus Pointe Global is currently recruiting CLL patients for an upcoming medical conditions study. Compensation potential of $1000+. Find out more here .
CLL Society 2019 Website Survey
We care about what you think. Please let us know what you like and how we can improve the CLL Society’s website and other services by going here .
Our CLL Experts Will See You Online!
Would you like a second look at your CLL? A generous grant funds our Expert Access Program, allowing you to see a world-renowned CLL physician- at no cost- for a second opinion, using our easy online platform . This program is open to all U.S. patients with a CLL diagnosis, and you are welcome to apply here. If you have used the program before, you may reapply if you need new clinical advice.
New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
Asheville, NC
Ft. Lauderdale / Miami, FL
Fort Worth, TX
Buffalo, NY
Cincinnati, OH
Greater Lehigh Valley, PA
Greensboro, NC
Hartford, CT
Las Vegas, NV
Palm Springs / Coachella Valley, CA
Phoenix, AZ
Raleigh/Durham, NC
Sacramento, CA
Santa Barbara/Lompoc, CA
Sarasota, FL
St. Louis, MO
Seattle and All Points North
Toronto, ON Canada
Tucson, AZ
FundFinder
Pan Foundation has opened its co-payment assistance program for CLL. To view more information or manage your account, log in to FundFinder.
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Learn more about this new assistance program.
Do you shop at Amazon?
Please use smile.amazon.comfor your shopping and a percentage of your purchases today and going forward will be donated to the CLL Society when you select us as your preferred charity. It costs you nothing and helps us.
CLL Society Support Group Meetings Coming Up!
Northeast Ohio CLL Patient Support Group – November 26 @ 7:00 pm
Boston CLL Patient Support Group – November 30 @ 1:00 pm
San Diego CLL Society Support and Education Meeting – December 4 @ 4:00 pm
New Orleans and Surrounding Areas CLL Support Group – December 4 @ 6:30 pm
The CLL Support Group of Albany (NY) – December 8 @ 12:00 pm
Atlanta Metro CLL Support Group – December 8 @ 3:00 pm
New York City CLL Support Group – December 8 @ 3:00 pm
Toronto CLL Support Group – December 9 @ 7:00 pm
Special announcement : the Portland, Central Florida, West LA, Washington DC-area, Milwaukee, Denver, and Nashville CLL Support Groups will not be meeting in the month of December.
Visit our website for the most up-to-date information on all CLL Society support group meetings.
Lymphoma Research Foundation Meetings
Tuesday, December 3, 2019 from 6:00 PM – 8:30 PM in Phoenix, AZ
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Sheraton Grand at Wild Horse Pass, Phoenix, AZ, featuring Allison Rosenthal, DO from Mayo Clinic. Find out more information and register here .
The Leukemia & Lymphoma Society Meetings
Leukemia and Lymphoma Society – Tucker – Family Support Group – December 3 @ 7:00 pm
The CLL Information & Support Group of Rockland County NY – December 5 @ 7:00 pm
Monday, December 9, 2019 from 6:00 PM to 8:30 PM in Fort Wayne, IN
LLS invites you to attend this FREE Patient Education Program: Living Well with CLL: diagnosis, treatment and support held at Eddie Merlot’s, Fort Wayne, IN, featuring Dr. Robert F. Manges, MD, from Parkview Health, and Becky Kreps, LCSW, OSW-C, from Cancer Services of Northeast Indiana. Dinner will be provided to registered attendees. This event is free but registration is required. Find out more information and register here .
IU Simon Cancer Center
CLL and Indolent Blood Cancers Support Group – December 2 @ 6:00 pm
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