The future of CLL therapy we believe will include fixed duration treatments of non-chemo drugs. In this interview from EHA 2019, Dr. Peter Hillman discusses one of the most promising, Venetoclax and Obinutuzumab. Watch the interview.
At EHA 2019, Dr. Ghia presented the data that should lead to the approval of acalabrutinib in relapsed/refractory CLL, discussed the end of chemo, and the need for a CLL expert. Watch the interview.
Have you started your holiday shopping?
Don’t forget you can support CLL Society at no cost to you! How? Simply type in smile.amazon.com into your browser and select CLL Society as your charity. Shop like you normally do, and Amazon will automatically donate a portion of the purchase price to CLL Society.
These small amounts add up, and we are so grateful for every dollar, which will help us provide important education and services to the CLL patient community.
Of course, you can always make a direct donation as well.
For those already donating through Amazon Smile, THANK YOU!
Watch our latest CLL Society Webinar Archive
If you missed the CLL Society Webinar, “Veterans with CLL: How to Get the Benefits and Care You Deserve,” you can find the webinar recording and presentation slides linked here for this important topic.
Test Before Treat™
As part of our campaign for Test Before Treat™ to make all patients aware of the importance of testing before treatment, we are looking for your statement on how your testing before treatment, or sadly, the lack thereof, influenced your CLL management. Please drop us one or two lines at firstname.lastname@example.org.
Patients and Caregivers Needed for Surveys
Pillar Patient Advocates has a paid ($150) opportunity for 24 patients of varying stages of CLL, who have been diagnosed within the past three years. Find out more here.
Focus Pointe Global is currently recruiting CLL patients for an upcoming medical conditions study. Compensation potential of $1000+. Find out more here.
CLL Society 2019 Website Survey
We care about what you think. Please let us know what you like and how we can improve the CLL Society’s website and other services by going here.
Our CLL Experts Will See You Online!
Would you like a second look at your CLL? A generous grant funds our Expert Access Program, allowing you to see a world-renowned CLL physician- at no cost- for a second opinion, using our easy online platform. This program is open to all U.S. patients with a CLL diagnosis, and you are welcome to apply here. If you have used the program before, you may reapply if you need new clinical advice.
From one of our readers:
As a patriot and believer in supporting our Veterans, I wrote and performed a special song in their honor. Please share! – Craig Colley.
New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
Ft. Lauderdale / Miami, FL
Fort Worth, TX
Greater Lehigh Valley, PA
Las Vegas, NV
Palm Springs / Coachella Valley, CA
Santa Barbara/Lompoc, CA
St. Louis, MO
Seattle and All Points North
Toronto, ON Canada
Pan Foundation has opened its co-payment assistance program for CLL. To view more information or manage your account, log in to FundFinder.
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Learn more about this new assistance program.
Do you shop at Amazon?
Please use smile.amazon.comfor your shopping and a percentage of your purchases today and going forward will be donated to the CLL Society when you select us as your preferred charity. It costs you nothing and helps us.
CLL Society Support Group Meetings Coming Up!
The Orange County CLL Support Group – November 12 @ 7:00 pm
Salt Lake City CLL Support Group – November 13 @ 7:00 pm
Long Island CLL Support Group – November 14 @ 6:45 pm
Denver CLL Patient Support Group – November 14 @ 7:00 pm
Western North Carolina CLL Patient Support Group – November 16 @ 10:00 am
Central Florida CLL Support Group – November 16 @ 10:30 am
West LA CLL Support Group – November 16 @ 11:00 am
Oberlin, OH, CLL Patient Support Group – November 16 @ 1:00 pm
Washington DC-area CLL Patient Support Group – November 16 @ 3:00 pm
DFW – Dallas Area CLL Patient Support Group – November 17 @ 3:00 pm
San Francisco area CLL Patient Support Group – November 17 @ 4:00 pm
City of Hope CLL Support Group – November 18 @ 7:00 pm
Chicago CLL Support Group – November 19 @ 7:00 pm
Rochester NY CLL Support Group – November 20 @ 7:00 pm
Milwaukee CLL Support Group – November 21 @ 6:00 pm
New Jersey CLL Patient Support Group – November 21 @ 7:00 pm
Nashville CLL Patient Support Group – November 23 @ 12:00 pm
Special cancellation announcements: the New Orleans and Twin Cities CLL Support Groups have cancelled their meetings for the month of November.
Visit our website for the most up-to-date information on all CLL Society support group meetings.
Lymphoma Research Foundation Meetings
Tuesday, November 19, 2019 from 6:00 PM – 8:30 PM in Durham, NC
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Residence Inn by Marriott Durham McPherson/Duke University Medical Center Area featuring Dr. Matthew Stuart McKinney, MD from Duke Cancer Center. Find out more information and register here.
The Leukemia & Lymphoma Society Meetings
Saturday, November 16, 2019 from 9:00 AM to 1:00 PM in Ventura, CA
LLS invites you to attend this FREE Patient Education Program: Living Well with CLL: diagnosis, treatment and support held at Wyndham Garden Ventura Pierpont Inn, Pavillion Room, Ventura, CA, featuring Alexey V. Danilov, MD, PhD from Oregon Health & Science University, and Alicia Zaragoza, NP-C, CN-BN from Dignity Health St. John’s Hospital. Dinner will be provided to registered attendees. This event is free but registration is required. Find out more information and register here.