January 21, 2020
Dr. Danilov of OHSU talks about a new combination, Entospletinib + Obinutuzumab, that was promising activity and tolerability in a fixed duration therapy for CLL. Watch the interview.
Dr. Peter Hillmen discusses the results of Watch and Wait versus early Ibrutinib in CLL present at EHA 2019. Watch the interview.
Dr. Matthew Davids discusses a promising chemo and venetoclax combination for Richter’s Transformation which usually has a dismal prognosis. Watch the interview.
Test Before Treat™
As part of our campaign for Test Before Treat™ to make all patients aware of the importance of testing before treatment, we are looking for your statement on how your testing before treatment, or sadly, the lack thereof, influenced your CLL management. Please drop us one or two lines at support@cllsociety.org.
We invite you to attend our CLL Society Webinar
Tuesday, Nov 5, 2019, at 10:00 AM PDT / 1:00 PM EDT
Veterans with CLL: How to Get the Benefits and Care You Deserve
This CLL Society webinar will provide perspectives from a VA physician and a Veteran with a CLL diagnosis. Register here.
Patients and Caregivers Needed for Surveys
Pillar Patient Advocates has a paid ($150) opportunity for 24 patients of varying stages of CLL, who have been diagnosed within the past three years. Find out more here.
Focus Pointe Global is currently recruiting CLL patients for an upcoming medical conditions study. Compensation potential of $1000+. Find out more here.
CLL Society 2019 Website Survey
We care about what you think. Please let us know what you like and how we can improve the CLL Society’s website and other services by going here.
Our CLL Experts Will See You Online!
Would you like a second look at your CLL? A generous grant funds our Expert Access Program, allowing you to see a world-renowned CLL physician- at no cost- for a second opinion, using our easy online platform. This program is open to all U.S. patients with a CLL diagnosis, and you are welcome to apply here. If you have used the program before, you may reapply if you need new clinical advice.
New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
Asheville, NC
Ft. Lauderdale / Miami, FL
Fort Worth, TX
Buffalo, NY
Cincinnati, OH
Greater Lehigh Valley, PA
Greensboro, NC
Hartford, CT
Las Vegas, NV
Palm Springs / Coachella Valley, CA
Phoenix, AZ
Raleigh/Durham, NC
Sacramento, CA
Santa Barbara/Lompoc, CA
Sarasota, FL
St. Louis, MO
Seattle and All Points North
Toronto, ON Canada
Tucson, AZ
FundFinder
Pan Foundation has opened its co-payment assistance program for CLL. To view more information or manage your account, log in to FundFinder.
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Learn more about this new assistance program.
Do you shop at Amazon?
Please use smile.amazon.comfor your shopping and a percentage of your purchases today and going forward will be donated to the CLL Society when you select us as your preferred charity. It costs you nothing and helps us.
CLL Society Support Group Meetings Coming Up!
Portland CLL Support Group – November 5 @ 6:00 pm
San Diego CLL Society Support and Education Meeting – November 6 @ 4:00 pm
Houston-area CLL Support Group – November 9 @ 10:00 am
Central Massachusetts CLL Support Group – November 9 @ 12:30 pm
Seattle-Olympic Peninsula CLL Support Group – November 9 @ 1:00 pm
Orlando CLL Support Group – November 9 @ 2:00 pm
Philadelphia CLL Patient Support Group – November 9 @ 2:00 pm
Atlanta Metro CLL Support Group – November 10 @ 3:00 pm
New York City CLL Support Group – November 10 @ 3:00 pm
Toronto CLL Support Group – November 11 @ 7:00 pm
KU Medical Center CLL Support Group – November 12 @ 6:00 pm
The Orange County CLL Support Group – November 12 @ 7:00 pm
Salt Lake City CLL Support Group – November 13 @ 7:00 pm
Long Island CLL Support Group – November 14 @ 6:45 pm
Denver CLL Patient Support Group – November 14 @ 7:00 pm
Western North Carolina CLL Patient Support Group – November 16 @ 10:00 am
Central Florida CLL Support Group – November 16 @ 10:30 am
West LA CLL Support Group – November 16 @ 11:00 am
Oberlin, OH, CLL Patient Support Group – November 16 @ 1:00 pm
Washington DC-area CLL Patient Support Group – November 16 @ 3:00 pm
San Francisco area CLL Patient Support Group – November 17 @ 4:00 pm
City of Hope CLL Support Group – November 18 @ 7:00 pm
Special cancellation announcements: the New Orleans and Twin Cities CLL Support Groups have cancelled their meetings for the month of November.
Visit our website for the most up-to-date information on all CLL Society support group meetings.
CLL Patient and Caregiver Educational Forum, Salt Lake City, UT
Saturday November 9, 2019, 7:30 AM to 12:00 PM at Huntsman Cancer Institute
In partnership with the Huntsman Cancer Institute, the CLL Society invites you to attend our informational CLL Patient Educational Forum. Featured speakers will present the basics of CLL diagnosis, early management, clinical trials, treatment options, patient perspectives, and tips to become an effective self-advocate.
Please see additional information and registration here: https://cllsociety.org/patient-education-forums/
Lymphoma Research Foundation Meetings
Saturday, November 9, 2019 from 7:30 AM – 2:30 PM in Manhattan Beach, CA
The Lymphoma Research Foundation invites you to attend a Lymphoma Workshop: Understanding Lymphoma Basics and Current Treatment Options featuring Alex Herrera, MD from City of Hope and Lauren Pinter-Brown, MD, FACP from University of California, Irvine. Find out more information and register here.
The Leukemia & Lymphoma Society Meetings
Thursday, November 7, 2019 from 6:00 PM to 8:30 PM in Boston, MA – For Physicians
Share with your CLL Doctor: If you are in the greater Boston area, please share this CLL educational opportunity with your doctor. LLS invites your physician to attend Treatment of CLL and CML in a Rapidly Evolving Therapeutic Landscape being held at the Boston Marriott Copley Place, featuring Jon E. Arnason, MD from Beth Israel Deaconess Medical Center and Anita Kumar, MD, MS from Tufts Medical Center. Find out more information and register here.
Leukemia and Lymphoma Society – Tucker – Family Support Group – November 5 @ 7:00 pm
The CLL Information & Support Group of Rockland County NY – November 7 @ 7:00 pm
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