While the CLL Society team has been more than busy at ASH 2019 in Orlando, Florida doing interviews, reviewing the major CLL research and presenting our abstract, this week we are continuing to count down our 10 ten CLL abstracts from ASCO 2019.
#8 Surviving CLL is only part of the story if we are going to succumb to second cancers. This ASCO abstract studies second cancers in CLL patients on ibrutinib or acalabrutib .
In his #7 of the top 10 CLL abstracts from ASH, Dr. Koffman reviews the encouraging data on the benefits of transplants for Richter’s Transformations .
Guest writer, Brian Maxson is a CLL patient and an inquisitive engineer who lays out the points Dr. Stilgenbauer made at the ERIC meeting about the timely topic of sequential versus combination therapies in CLL .
Have you started your holiday shopping?
Don’t forget you can support CLL Society at no cost to you! How? Simply type smile.amazon.com into your browser and select CLL Society as your charity. Shop like you normally do, and Amazon will automatically donate a portion of the purchase price to CLL Society.
These small amounts add up, and we are so grateful for every dollar, which will help us provide important education and services to the CLL patient community.
Of course, you can always make a direct donation as well.
For those already donating through Amazon Smile, THANK YOU!
The 1st 2020 post ASH Patient Educational Forum at City Of Hope on Jan. 11
We are excited to be returning to City of Hope on the morning of January 11 for our 5th Annual Post ASH Patient and Caregiver Education Forum featuring the latest news from ASH presented by, among others, CLL superstars, Drs. Rosen and Danilov. View more information and register here for this free CLL-specific educational forum.
Watch our latest CLL Society Webinar Archive
If you missed the CLL Society Webinar, “Veterans with CLL: How to Get the Benefits and Care You Deserve,” you can find the webinar recording and presentation slides linked here for this important topic.
Test Before Treat™
Test Before Treat™ CLL Experts, Doctors Mato, Stilgenbauer, Furman, Jain, and Davids endorse Test Before Treat™. Find out what you need to know before every treatment.
As part of our campaign for Test Before Treat™ to make all patients aware of the importance of testing before treatment, we are looking for your statement on how your testing before treatment, or sadly, the lack thereof, influenced your CLL management. Please drop us one or two lines at firstname.lastname@example.org .
Patients and Caregivers Needed for Surveys
Pillar Patient Advocates has a paid ($150) opportunity for 24 patients of varying stages of CLL, who have been diagnosed within the past three years. Find out more here .
Focus Pointe Global is currently recruiting CLL patients for an upcoming medical conditions study. Compensation potential of $1000+. Find out more here .
Our CLL Experts Will See You Online!
Would you like a second look at your CLL? A generous grant funds our Expert Access Program, allowing you to see a world-renowned CLL physician- at no cost- for a second opinion, using our easy online platform . This program is open to all U.S. patients with a CLL diagnosis, and you are welcome to apply here. If you have used the program before, you may reapply if you need new clinical advice.
New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
Ft. Lauderdale / Miami, FL
Fort Worth, TX
Greater Lehigh Valley, PA
Las Vegas, NV
Palm Springs / Coachella Valley, CA
Santa Barbara/Lompoc, CA
St. Louis, MO
Seattle and All Points North
Toronto, ON Canada
Pan Foundation has opened its co-payment assistance program for CLL. To view more information or manage your account, log in to FundFinder.
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Learn more about this new assistance program.
Do you shop at Amazon?
Please use smile.amazon.comfor your shopping and a percentage of your purchases today and going forward will be donated to the CLL Society when you select us as your preferred charity. It costs you nothing and helps us.
CLL Society Support Group Meetings Coming Up!
The Orange County CLL Support Group – December 10 @ 7:00 pm
Salt Lake City CLL Support Group – December 11 @ 7:00 pm
Long Island CLL Support Group – December 12 @ 6:45 pm
Twin Cities CLL Support Group – December 12 @ 7:00 pm
Houston-area CLL Support Group – December 14 @ 10:00 am
Central Massachusetts CLL Support Group – December 14 @ 12:30 pm
Seattle-Olympic Peninsula CLL Support Group – December 14 @ 1:00 pm
Philadelphia CLL Patient Support Group – December 14 @ 2:00 pm
San Francisco area CLL Patient Support Group – December 15 @ 4:00 pm
City of Hope CLL Support Group – December 16 @ 7:00 pm
Chicago CLL Support Group – December 17 @ 7:00 pm
Twin Cities CLL Support Group – December 19 @ 7:00 pm
New Jersey CLL Patient Support Group – December 19 @ 7:00 pm
Oberlin, OH, CLL Patient Support Group – December 21 @ 1:00 pm
Special announcement : the Central Florida, Dallas, Denver, Milwaukee, Nashville, Orlando, Portland, Washington DC-area, West LA, and Western North Carolina CLL Support Groups will not be meeting in the month of December.
Visit our website for the most up-to-date information on all CLL Society support group meetings.
Lymphoma Research Foundation Meetings
Monday, December 16, 2019 from 6:00 PM – 8:30 PM in New York, NY
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the DoubleTree by Hilton, Metropolitan – NYC, featuring Connie Lee Batlevi, MD, PhD from Memorial Sloan Kettering Cancer Center. Find out more information and register here .
The Leukemia & Lymphoma Society Meetings
Saturday, January 25, 2020 from 9:30 AM to 3:45 PM in San Francisco, CA
LLS invites you to attend the Northern California Blood Cancer Conference 2020 being held at the Hyatt Regency San Francisco. This event is free but registration is required. Find out more information and register here .