Please consider making a tax deductible donation to the CLL Society. Donate now!
This year, someone you know or someone you do not know will need the critical support that the CLL Society provides. THANK YOU!
New this week!
Dr. Koffman continues his countdown of the top 10 ASCO abstracts related to CLL. Here are numbers 6 and 5.
The combination of acalabrutinib and obinituzumab proved to be well tolerated and very effective in all stages of CLL. Watch Dr. Koffman’s review of this research here.
CAR-T therapy has significant side effects and risks, but it knocks back the CLL in most patients. Here is Dr. Koffman’s video review of this important ASCO abstract on CAR-T. We will be updating this using the data set from ASH early in 2020.
The CLL Society Tribune has been Released!
Our Fourth 2019 issue of The CLL Society Tribune has just been released! This quarter’s issue brings you the latest news, answers to your questions from our Medical Advisory Board, research, stories, and creative efforts shared by patients and caregivers.
Among other things, don’t miss Patty Koffman’s famous Cajun Gingerbread recipe just in time for the holidays, Dr. Pleyer on vaccinations in CLL, Dr. Koffman’s 4 psychological tips, Dr. LeClair on normal lab values, Brian Maxson and Cathy Jensen sharing life lessons, and so much more.
Remember CLL Society when you holiday shop!
Don’t forget you can support CLL Society at no cost to you! How? Simply type smile.amazon.com into your browser and select “CLL Society” as your charity. Shop like you normally do, and Amazon will automatically donate a portion of the purchase price to CLL Society.
These small amounts add up, and we are so grateful for every dollar, which will help us provide important education and services to the CLL patient community.
Of course, you can always make a direct donation as well.
For those already donating through Amazon Smile, THANK YOU!
The 1st 2020 post ASH Patient Educational Forum at City Of Hope on Jan. 11
We are excited to be returning to City of Hope on the morning of January 11 for our 5th Annual Post ASH Patient and Caregiver Education Forum featuring the latest news from ASH presented by, among others, CLL superstars, Drs. Rosen and Danilov. View more information and register here for this free CLL-specific educational forum.
Test Before Treat™
Test Before Treat™ CLL Experts, Doctors Mato, Stilgenbauer, Furman, Jain, and Davids endorse Test Before Treat™. Find out what you need to know before every treatment.
Download the Test Before Treat™ one-pager to discuss with your doctor. Pick up one of our free, informative, bright red Test Before Treat™ bracelets at any one of our 2020 Patient Educational Forums.
As part of our campaign for Test Before Treat™ to make all patients aware of the importance of testing before treatment, we are looking for your statement on how your testing before treatment, or sadly, the lack thereof, influenced your CLL management. Please drop us one or two lines at firstname.lastname@example.org.
Patients and Caregivers Needed for Surveys
Pillar Patient Advocates has a paid ($150) opportunity for 24 patients of varying stages of CLL, who have been diagnosed within the past three years. Find out more here.
Focus Pointe Global is currently recruiting CLL patients for an upcoming medical conditions study. Compensation potential of $1000+. Find out more here.
Our CLL Experts Will See You Online!
Would you like a second look at your CLL? A generous grant funds our Expert Access Program, allowing you to see a world-renowned CLL physician- at no cost- for a second opinion, using our easy online platform. This program is open to all U.S. patients with a CLL diagnosis, and you are welcome to apply here. If you have used the program before, you may reapply if you need new clinical advice.
New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
Ft. Lauderdale / Miami, FL
Fort Worth, TX
Greater Lehigh Valley, PA
Las Vegas, NV
Palm Springs / Coachella Valley, CA
Santa Barbara/Lompoc, CA
St. Louis, MO
Seattle and All Points North
Toronto, ON Canada
Pan Foundation has opened its co-payment assistance program for CLL. To view more information or manage your account, log in to FundFinder.
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Learn more about this new assistance program.
Do you shop at Amazon?
Please use smile.amazon.comfor your shopping and a percentage of your purchases today and going forward will be donated to the CLL Society when you select us as your preferred charity. It costs you nothing and helps us.
CLL Society Support Group Meetings Coming Up!
Chicago CLL Support Group – December 17 @ 7:00 pm
Twin Cities CLL Support Group – December 19 @ 7:00 pm
New Jersey CLL Patient Support Group – December 19 @ 7:00 pm
Oberlin, OH, CLL Patient Support Group – December 21 @ 1:00 pm
Northeast Ohio CLL Patient Support Group – December 24 @ 7:00 pm
Boston CLL Patient Support Group – December 28 @ 1:00 pm
Special announcement: the Central Florida, Dallas, Denver, Milwaukee, Nashville, Orlando, Portland, Rochester, Washington DC-area, West LA, and Western North Carolina CLL Support Groups will not be meeting in the month of December.
Visit our website for the most up-to-date information on all CLL Society support group meetings.
Lymphoma Research Foundation Meetings
Thursday, January 16, 2020 from 6:00 PM – 8:30 PM in Coral Gables, FL
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Hyatt Regency Coral Gables, featuring Craig Moskowitz, MD from University of Miami Health System. Find out more information and register here.
Thursday, January 16, 2020 from 6:00 PM – 8:30 PM in The Villages, FL
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the The Waterfront Inn, featuring Jennifer Cultrera, MD from Florida Cancer Specialists. Find out more information and register here.
The Leukemia & Lymphoma Society Meetings
Saturday, January 25, 2020 from 9:30 AM to 3:45 PM in San Francisco, CA
LLS invites you to attend the Northern California Blood Cancer Conference 2020 being held at the Hyatt Regency San Francisco. This event is free but registration is required. Find out more information and register here.
Saturday, February 29, 2020 from 9:00 AM to 3:00 PM in Fort Lauderdale, FL
LLS invites you to attend the Florida Blood Cancer Conference being held at the Fort Lauderdale Marriott Harbor Beach Resort & Spa. This event is free but registration is required. Find out more information and register here.