Dr. Koffman chooses his top 10 CLL related abstracts from ASCO 2019 and counts them down over the next few weeks. #10 is Cognitive function in CLL/ Examining effects of disease, treatment, and inflammation.
CLL changes the immune pathways for its own benefit and to our detriment. However, that does suggest that immune therapies targeting those changes may be helpful. For more on this technical subject from one of Dr. Koffman’s top ten CLL abstracts from ASCO 2019, read and watch here.
Dr. Koffman is often asked to share the patient’s perspective. Here is one recent example.
We owe a great debt to our veterans, but they may not get the benefits and care they deserve. Please see this on Agent Orange exposure and Camp Lejeune.
Today is Giving Tuesday
Please consider a gift of cash, art or a vehicle by making a direct donation.
Have you started your holiday shopping?
Don’t forget you can support CLL Society at no cost to you! How? Simply type smile.amazon.com into your browser and select CLL Society as your charity. Shop like you normally do, and Amazon will automatically donate a portion of the purchase price to CLL Society.
These small amounts add up, and we are so grateful for every dollar, which will help us provide important education and services to the CLL patient community.
The 1st 2020 post ASH Patient Educational Forum at City Of Hope on Jan. 11
We are excited to be returning to City of Hope on the morning of January 11 for our 5th Annual Post ASH Patient and Caregiver Education Forum featuring the latest news from ASH presented by, among others CLL superstars, Drs. Rosen and Danilov. Final details on this up to the minute patient conference to follow, but you register here.
Test Before Treat™
“More Patients Spill the Beans on their Test Before Treat™ Experiences”:
Bruce’s 2nd opinion with a CLL expert enabled him to enjoy 15 years of Watch & Wait as opposed to the first recommended chemotherapy. Heather’s story reveals the twists and turns of trying to coordinate your care when your local hem/onc and your expert are not in close communication about what testing should be done. Michelle gives us 3 important lessons on how to manage CLL. Gary’s lack of testing will have him forever questioning his first doctor’s treatment recommendation and its relationship to his TP53 mutation. Read their stories. Download the Test Before Treat™ one-pager. Pick up a Test Before Treat Bracelet at one of our 12 Patient Educational Forums. And send in your stories! firstname.lastname@example.org. Smart Patients Get Smart Care™.
Test Before Treat™ CLL Experts, Doctors Mato, Stilgenbauer, Furman, Jain, and Davids endorse Test Before Treat™. Find out what you need to know before every treatment.
Watch our latest CLL Society Webinar Archive
If you missed the CLL Society Webinar, “Veterans with CLL: How to Get the Benefits and Care You Deserve,” you can find the webinar recording and presentation slides linked here for this important topic.
Patients and Caregivers Needed for Surveys
Pillar Patient Advocates has a paid ($150) opportunity for 24 patients of varying stages of CLL, who have been diagnosed within the past three years. Find out more here.
Focus Pointe Global is currently recruiting CLL patients for an upcoming medical conditions study. Compensation potential of $1000+. Find out more here.
Our CLL Experts Will See You Online!
Would you like a second look at your CLL? A generous grant funds our Expert Access Program, allowing you to see a world-renowned CLL physician- at no cost- for a second opinion, using our easy online platform. This program is open to all U.S. patients with a CLL diagnosis, and you are welcome to apply here. If you have used the program before, you may reapply if you need new clinical advice.
New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
Ft. Lauderdale / Miami, FL
Fort Worth, TX
Greater Lehigh Valley, PA
Las Vegas, NV
Palm Springs / Coachella Valley, CA
Santa Barbara/Lompoc, CA
St. Louis, MO
Seattle and All Points North
Toronto, ON Canada
Pan Foundation has opened its co-payment assistance program for CLL. To view more information or manage your account, log in to FundFinder.
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Learn more about this new assistance program.
Do you shop at Amazon?
Please use smile.amazon.comfor your shopping and a percentage of your purchases today and going forward will be donated to the CLL Society when you select us as your preferred charity. It costs you nothing and helps us.
CLL Society Support Group Meetings Coming Up!