March 24, 2020
Dear Friends and Supporters of the CLL Society,
New this week!
Much news to report.
Dr. Burger at iwCLL 2019, discusses the importance of the B cell receptor and blocking it in CLL .
The CLL Society and Dr. Brian Koffman were featured in USA Today in this informative sponsored infographic on CLL.
Last week, ClonoSeq, a test that uses next generation sequencing (NGS) to measure deeper levels of minimal residual disease, was approved by Medicare to be paid for in CLL. Read why this is good news .
LLS is offering support to help with CLL related travel expenses in California and Hawaii as well as other financial assistance across the country. Learn more here .
Dallas Patient and Caregiver Educational Forum Registration Now Open!
Join us on February 29 with UT Southwestern in Dallas, TX. Register here .
We value your input!
If you haven’t provided your feedback about the CLL Society website, we want to hear from you! Please complete our brief survey to help us improve this resource.
If you belong to one of our many support groups, please complete our annual survey so that we can better serve you.
As we look to 2020 and beyond, we are interested in knowing what you would like to see the CLL Society accomplish. Give us your BIGGEST WISH! We want both patients and caregivers to please complete this.
Test Before Treat™
This week we read about David, who was scheduled to begin FCR… find out what happens . Download our Test Before Treat™ one-pager to discuss with your doctor. Pick up a free bright red Test Before Treat™ reminder bracelet at our 2020 Patient Educational Forums. Tell us how testing before treatment, or lack thereof, influenced your CLL management at support@cllsociety.org .
Our CLL Experts Will See You Online!
Would you like a second look at your CLL? A generous grant funds our Expert Access Program, allowing you to see a world-renowned CLL physician- at no cost- for a second opinion, using our easy online platform . This program is open to all U.S. patients with a CLL diagnosis, and you are welcome to apply here. If you have used the program before, you may reapply if you need new clinical advice.
CLL Society Support Group Meetings Coming Up!
Long Island CLL Support Group – January 2, 2020 @ 6:45 pm
San Diego CLL Society Support and Education Meeting – January 8, 2020 @ 4:00 pm
Portland CLL Support Group – January 8, 2020 @ 6:00 pm
Salt Lake City CLL Support Group – January 8, 2020 @ 7:00 pm
Houston-area CLL Support Group – January 11, 2020 @ 10:00 am
Central Massachusetts CLL Support Group – January 11, 2020 @ 12:30 pm
Seattle-Olympic Peninsula CLL Support Group – January 11, 2020 @ 1:00 pm
Orlando CLL Support Group – January 11, 2020 @ 2:00 pm
Philadelphia CLL Patient Support Group – January 11, 2020 @ 2:00 pm
Atlanta Metro CLL Support Group – January 12, 2020 @ 3:00 pm
New York City CLL Support Group – January 12, 2020 @ 3:00 pm
Visit our website for the most up-to-date information on all CLL Society support group meetings.
Lymphoma Research Foundation Meetings
Thursday, January 16, 2020 from 6:00 PM – 8:30 PM in Coral Gables, FL
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Hyatt Regency Coral Gables, featuring Craig Moskowitz, MD from University of Miami Health System. Find out more information and register here.
Thursday, January 16, 2020 from 6:00 PM – 8:30 PM in The Villages, FL
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the The Waterfront Inn, featuring Jennifer Cultrera, MD from Florida Cancer Specialists. Find out more information and register here.
The Leukemia & Lymphoma Society Meetings
The CLL Information & Support Group of Rockland County NY – January 2, 2020 @ 7:00 pm
Leukemia and Lymphoma Society – Tucker – Family Support Group – January 7, 2020 @ 7:00 pm
Saturday, January 25, 2020 from 9:30 AM to 3:45 PM in San Francisco, CA
LLS invites you to attend the Northern California Blood Cancer Conference 2020 being held at the Hyatt Regency San Francisco. This event is free but registration is required. Find out more information and register here.
Saturday, February 29, 2020 from 9:00 AM to 3:00 PM in Fort Lauderdale, FL
LLS invites you to attend the Florida Blood Cancer Conference being held at the Fort Lauderdale Marriott Harbor Beach Resort & Spa. This event is free but registration is required. Find out more information and register here.
IU Simon Cancer Center
CLL and Indolent Blood Cancers Support Group in Indianapolis, IN – January 6, 2020 @ 6:00 pm
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