March 24, 2020
Dear Friends and Supporters of the CLL Society,
The 1st 2020 post ASH Patient Educational Forum at City Of Hope on Jan. 11
We are excited to be returning to City of Hope on the morning of January 11 for our 5th Annual Post ASH Patient and Caregiver Educational Forum featuring the latest news from ASH presented by, among others, CLL superstars, Drs. Rosen and Danilov. View more information and register here for this free CLL-specific educational forum.
Thank you!
To our 2019 donors and volunteers: A big “Thank You” for your extraordinary kindness and generosity in 2019. Thanks to you, CLL patients and their caregivers will continue to find critical support, credible cutting-edge treatment information and a whole host of services in 2020. We are diminishing the possibility that any CLL patient will have to go it alone. Stay strong. We are all in this together! Donate to CLL Society
New this week!
It’s not just our CLL that determines how well we do. It is also what other illness we have. At EHA 2019, Dr. Danilovdiscusses his findings related to our co-morbidities.
The phase III Alliance A041202 collaborative multi-centered trial demonstrated once and for all the superiority of ibrutinib versus Bendamustine/Rituximab (BR) when used frontline in older CLL patients. Dr. Brander from Duke fills in more details at iwCLL 2019 in Scotland.
Dr. Koffman updates his journey with good news on his scans and blood test, his plans and the loss of a famous friend.
Support Group Survey
If you belong to one of our many support groups, please complete our annual survey so that we can better serve you.
The CLL Society Tribune has been released!
Hope you haven’t missed any of the new articles and features in our last of 2019 CLL Society Tribune.
Test Before Treat™
Test Before Treat™ CLL Experts, Doctors Mato, Stilgenbauer, Furman, Jain, and Davids endorse Test Before Treat™. Find out what you need to know before every treatment.
Download the Test Before Treat™ one-pager to discuss with your doctor. Pick up one of our free, informative,bright red Test Before Treat™ bracelets at any one of our 2020 Patient Educational Forums.
As part of our campaign for Test Before Treat™ to make all patients aware of the importance of testing before treatment, we are looking for your statement on how your testing before treatment, or sadly, the lack thereof, influenced your CLL management. Please drop us one or two lines at support@cllsociety.org.
Patients and Caregivers Needed for Surveys
Focus Pointe Global is currently recruiting CLL patients for an upcoming medical conditions study. Compensation potential of $1000+. Find out more here.
Our CLL Experts Will See You Online!
Would you like a second look at your CLL? A generous grant funds our Expert Access Program, allowing you to see a world-renowned CLL physician- at no cost- for a second opinion, using our easy online platform. This program is open to all U.S. patients with a CLL diagnosis, and you are welcome to apply here. If you have used the program before, you may reapply if you need new clinical advice.
CLL Society Support Group Meetings Coming Up!
Long Island CLL Support Group – January 2, 2020 @ 6:45 pm
San Diego CLL Society Support and Education Meeting – January 8, 2020 @ 4:00 pm
Portland CLL Support Group – January 8, 2020 @ 6:00 pm
Salt Lake City CLL Support Group – January 8, 2020 @ 7:00 pm
Houston-area CLL Support Group – January 11, 2020 @ 10:00 am
Central Massachusetts CLL Support Group – January 11, 2020 @ 12:30 pm
Seattle-Olympic Peninsula CLL Support Group – January 11, 2020 @ 1:00 pm
Orlando CLL Support Group – January 11, 2020 @ 2:00 pm
Philadelphia CLL Patient Support Group – January 11, 2020 @ 2:00 pm
Atlanta Metro CLL Support Group – January 12, 2020 @ 3:00 pm
New York City CLL Support Group – January 12, 2020 @ 3:00 pm
Visit our website for the most up-to-date information on all CLL Society support group meetings.
Lymphoma Research Foundation Meetings
Thursday, January 16, 2020 from 6:00 PM – 8:30 PM in Coral Gables, FL
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Hyatt Regency Coral Gables, featuring Craig Moskowitz, MD from University of Miami Health System. Find out more information and register here.
Thursday, January 16, 2020 from 6:00 PM – 8:30 PM in The Villages, FL
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the The Waterfront Inn, featuring Jennifer Cultrera, MD from Florida Cancer Specialists. Find out more information and register here.
The Leukemia & Lymphoma Society Meetings
The CLL Information & Support Group of Rockland County NY – January 2, 2020 @ 7:00 pm
Leukemia and Lymphoma Society – Tucker – Family Support Group – January 7, 2020 @ 7:00 pm
Saturday, January 25, 2020 from 9:30 AM to 3:45 PM in San Francisco, CA
LLS invites you to attend the Northern California Blood Cancer Conference 2020 being held at the Hyatt Regency San Francisco. This event is free but registration is required. Find out more information and register here.
Saturday, February 29, 2020 from 9:00 AM to 3:00 PM in Fort Lauderdale, FL
LLS invites you to attend the Florida Blood Cancer Conference being held at the Fort Lauderdale Marriott Harbor Beach Resort & Spa. This event is free but registration is required. Find out more information and register here.
IU Simon Cancer Center
CLL and Indolent Blood Cancers Support Group in Indianapolis, IN – January 6, 2020 @ 6:00 pm
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