March 31, 2020
Dear Friends and Supporters of the CLL Society,
New this week!
We have so many great drugs to treat CLL. How to sequence them is unclear, but Dr. Mato presents some reassuring data that when we use venetoclax, we still have some good options when it stops working in this interview from ASH 2019.
CLLAN is an international “umbrella” charity organization that the CLL Society proudly supports. Learn more here.
Patient and Caregiver Educational Forum Registration Now Open!
Join us on February 29 with UT Southwestern in Dallas, TX. Register here. Download agenda here.
In partnership with Memorial Sloan Kettering Cancer Center, the CLL Society will be returning to NYC on March 7th for an educational forum at Rockefeller Research Laboratories. Register here and download the agenda here.
We value your input!
If you have been treated with venetoclax + obinutuzumab (Gazya) or with acalabrutinib (Calquence), you can help fellow CLL patients in Canada gain access to these therapies by completing a brief survey. You do not have to live in Canada to help.
Please help our friends at the Lymphoma Coalition with their 2020 Global Patient Survey on Lymphomas & CLL.
Test Before Treat™
Stories from our readers highlight the importance of proper prognostic testing. Read here. Pick up a free bright red Test Before Treat™ reminder bracelet at our 2020 Patient Educational Forums. Tell us how testing before treatment, or lack thereof, influenced your CLL management at support@cllsociety.org.
Our CLL Experts Will See You Online!
Would you like a second look at your CLL? A generous grant funds our Expert Access Program, allowing you to see a world-renowned CLL physician- at no cost- for a second opinion, using our easy online platform. This program is open to all U.S. patients with a CLL diagnosis, and you are welcome to apply here. If you have used the program before, you may reapply if you need new clinical advice.
CLL Society Support Group Meetings Coming Up!
Chicago CLL Support Group – February 18 @ 7:00 pm
Milwaukee CLL Support Group – February 20 @ 6:00 pm
Denver CLL Patient Support Group – February 20 @ 6:30 pm
Twin Cities CLL Support Group – February 20 @ 7:00 pm
New Jersey CLL Patient Support Group – February 20 @ 7:00 pm
Northeast Ohio CLL Patient Support Group – February 25 @ 7:00 pm
Portland CLL Support Group – February 26 @ 6:00 pm
New Orleans and Surrounding Areas CLL Support Group – February 26 @ 6:30 pm
Rochester NY CLL Support Group – February 26 @ 7:00 pm
Long Island CLL Support Group – February 27 @ 6:45 pm
Boston CLL Patient Support Group – February 29 @ 1:00 pm
Visit our website for the most up-to-date information on all CLL Society support group meetings.
Lymphoma Research Foundation Meetings
Thursday, February 20, 2020, 6:00 PM – 8:30 PM in Philadelphia, PA
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Philadelphia 201 Hotel, featuring Jakub Svoboda, MD from Hospital of the University of Pennsylvania. Find out more information and register here.
Saturday, March 7, 2020, from 8:00 AM to 3:30 PM in Washington, DC
The Lymphoma Research Foundation invites you to attend 2020 Washington, DC Lymphoma Workshop at the Washington Marriott Georgetown. Find out more information and register here.
The Leukemia & Lymphoma Society Meetings
Saturday, February 29, 2020 from 9:00 AM to 3:00 PM in Fort Lauderdale, FL
LLS invites you to attend the Florida Blood Cancer Conference being held at the Fort Lauderdale Marriott Harbor Beach Resort & Spa. This event is free but registration is required. Find out more information and register here.
Leukemia and Lymphoma Society – Tucker – Family Support Group – March 3 @ 7:00 pm – 9:00 pm
Tuesday, March 3, 2020 from 6:00 PM to 8:00 PM in Claymont, DE
LLS invites you to attend the Patient Education Program: Living Well with CLL: diagnosis, treatment and support held at The Waterfall, Claymont, DE. This event is free but registration is required. Find out more information and register here.
Saturday, March 14, 2020 from 9:00 AM to 3:00 PM in Anaheim, CA
LLS invites you to attend the Southern California Blood Cancer Conference being held at the Anaheim Marriott. This event is free but registration is required. Find out more information and register here.
IU Simon Cancer Center
CLL and Indolent Blood Cancers Support Group in Indianapolis, IN – March 2 @ 6:00 pm
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