June 30, 2020
Dear Friends and Supporters of the CLL Society,
CLL Society COVID-19 Virtual Community Meeting
Please join us for our first event in a series: CLL Society COVID-19 Virtual Community Meeting on Friday, March 27, 2020 at 11:00 AM PT / 2 PM ET.
Attendees will be able to engage in a question-and-answer town hall format with Drs. Anthony Mato and Danielle Brander, leading CLL physicians, Dr. Susan LeClair, a scientist with expertise in COVID-19 testing,Tom Henry, a CLL patient and pharmacist, and possibly a special guest with experience treating CLL and COVID-19 patients.
Please see additional information and registration here .
New this week!
While Coronavirus is at the front of everyone’s mind, we still have other news and progress in the CLL world to share. Life goes on, even if we are all at least 6 feet apart.
Dr. Susan Leclair answers your questions concerning testing for the novel coronavirus.
Dr. Koffman writes about enjoying grapefruit for the first time in more than a dozen years.
Dr. Koffman celebrates his 2 year anniversary of receiving his CAR-T cells while reflecting on the present coronavirus chaos.
CLL patient, Rep. DeSaulnier’s condition worsens, now listed as critical in the hospital. Read more .
The CLL Society in consultation with CLL experts, has posted its official stance on routine doctors’ visits in and out of trials for CLL patients and Work and Travel during the pandemic.
Patient and Caregiver Educational Forum Updates
The following live events have been postponed due to the threat of coronavirus.
Louisville, KY – The Patient Educational Forum scheduled for April 25 with Norton Cancer Institute is postponed.
Minneapolis, MN – The Patient Educational Forum scheduled for April 25 with Mayo Clinic is postponed.
Phoenix, AZ – The Patient Educational Forum scheduled for April 25 with Mayo Clinic is postponed.
Boston, MA – The Patient Educational Forum scheduled for May 2 with Dana-Farber Cancer Institute is postponed.
Orange, CA – The Patient Educational Forum scheduled for May 9 with University of California-Irvine is postponed.
Bethesda, MD – The Patient Educational Forum scheduled for May 15 with National Institutes of Health is postponed.
Charlotte, NC – The Patient Educational Forum scheduled for May 16 with Levine Cancer Institute and Novant Health is postponed.
Visit our website for the most up-to-date information on all CLL Society Patient and Caregiver Educational Forums.
Test Before Treat™
Stories from our readers highlight the importance of proper prognostic testing. Read here . Pick up a free bright red Test Before Treat™ reminder bracelet at our 2020 Patient Educational Forums. Tell us how testing before treatment, or lack thereof, influenced your CLL management at support@cllsociety.org .
Our CLL Experts Will See You Online!
Would you like a second look at your CLL? A generous grant funds our Expert Access Program, allowing you to see a world-renowned CLL physician- at no cost- for a second opinion, using our easy online platform . This program is open to all U.S. patients with a CLL diagnosis, and you are welcome to apply here. If you have used the program before, you may reapply if you need new clinical advice.
CLL Society Support Group Meetings Coming Up!
We have been diligently monitoring the evolving issues related to the coronavirus (COVID-19). Out of an abundance of caution, CLL Society is cancelling all Support Group meetings for the month of March . We are assessing the situation daily and developing plans for virtual support group meetings. You should have received or will be receiving soon notice about virtual options to continue to stay connected during these unprecedented times. We thank you for your understanding and flexibility in this rapidly changing situation.
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.
Lymphoma Research Foundation Meetings
Please be advised that all of their Ask the Doctor programs have been postponed due to the threat of coronavirus. Visit the LRF site for more information.
The Leukemia & Lymphoma Society Meetings
Please be advised that all of their Living Well with CLL programs have been postponed through May 15th. Visit LLS.org for more information.
Virtual Events
Saturday, March 28, 2020 from 9:30 AM – 12:30 PM CDT
Patient Power invites you to hear from chronic lymphocytic leukemia experts and patients. Find out more information and register here .
LLS is also offering a virtual Q&A on COVID-19 for blood cancer patients at 12:00 PM to 1:00 PM ET, March 26 with their top medical staff, Drs. Nichols and Mesa. Find out more information and register here .
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