March 3, 2020

Dear Friends and Supporters of the CLL Society,

We wanted to let everyone know that we have been diligently monitoring the evolving issues related to the Coronavirus (COVID-19). Please read here for information about our live educational forums. We will continue to update you via our Weekly Alerts and on our website as the situation changes.

Our next Patient Educational Forum is in New York on Saturday, March 7 , agenda linked below and register here .

New this week!

Dr. Koffman stopped ibrutinib after almost 8 years. He discusses his thoughts and emotions around saying goodbye to his friend.

There is a role for imaging in managing CLL when there is an indication, but no role for “routine” imaging as Dr. Lamanna explains at iwCLL 2019 in Scotland in the article by Tom Henry , our Ask the Pharmacist expert.

Patient and Caregiver Educational Forum Registration Now Open!

New York, NY – Join us on March 7 with Memorial Sloan Kettering Cancer Center for the Patient Educational Forum. Register here and download the agenda here.

Louisville, KY – Join us on April 25 with Norton Cancer Institute for the Patient Educational Forum. Register here and find up-to-date information on our website here .

Minneapolis, MN – Join us on April 25 with Mayo Clinic for the Patient Educational Forum. Register here and find up-to-date information on our website here .

Phoenix, AZ – Join us on April 25 with Mayo Clinic for the Patient Educational Forum. Register here and find up-to-date information on our website here .

Test Before Treat™

Stories from our readers highlight the importance of proper prognostic testing. Read here . Pick up a free bright red Test Before Treat™ reminder bracelet at our 2020 Patient Educational Forums. Tell us how testing before treatment, or lack thereof, influenced your CLL management at support@cllsociety.org .

Our CLL Experts Will See You Online!

Would you like a second look at your CLL? A generous grant funds our Expert Access Program, allowing you to see a world-renowned CLL physician- at no cost- for a second opinion, using our easy online platform . This program is open to all U.S. patients with a CLL diagnosis, and you are welcome to apply here. If you have used the program before, you may reapply if you need new clinical advice.

CLL Society Support Group Meetings Coming Up!

San Diego CLL Society Support and Education Meeting – March 4 @ 4:00 pm

Suncoast CLL Support Group (Sarasota, FL) – March 7 @ 10:30 am

Atlanta Metro CLL Support Group – March 8 @ 3:00 pm

New York City CLL Support Group – March 8 @ 3:00 pm

Toronto CLL Support Group – March 9 @ 7:00 pm

The Orange County CLL Support Group – March 10 @ 7:00 pm

Cincinnati CLL Patient Support Group – March 11 @ 6:00 pm

Raleigh Area CLL Patient Support Group – March 11 @ 7:00 pm

Salt Lake City CLL Support Group – March 11 @ 7:00 pm

Long Island CLL Support Group – March 12 @ 6:45 pm 

Sacramento CLL Patient Support Group – March 12 @ 6:30 pm

Houston-area CLL Support Group – March 14 @ 10:00 am

Central Massachusetts CLL Support Group – March 14 @ 12:30 pm
This meeting is held on-demand, so please email centralmass.cll.group@gmail.com if you are interested in attending.

Seattle-Olympic Peninsula CLL Support Group – March 14 @ 1:00 pm 

Orlando CLL Support Group – March 14 @ 2:00 pm

Philadelphia CLL Patient Support Group – March 14 @ 2:00 pm

San Francisco area CLL Patient Support Group – March 15 @ 4:00 pm

City of Hope CLL Support Group – March 16 @ 7:00 pm

Chicago CLL Support Group – March 17 @ 7:00 pm

Visit our website for the most up-to-date information on all CLL Society support group meetings.

Lymphoma Research Foundation Meetings

Thursday, March 5, 2020 from 6:30 PM – 8:30 PM in Portland, OR

The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Courtyard by Marriott Portland City Center featuring Craig Okada, MD from Oregon Health and Science University Hospital. Find out more information and register here .

Saturday, March 7, 2020, from 8:00 AM to 3:30 PM in Washington, DC

The Lymphoma Research Foundation invites you to attend 2020 Washington, DC Lymphoma Workshop at the Washington Marriott Georgetown. Find out more information and register here .

Wednesday, March 18, 2020 from 6:30 PM – 8:30 PM in Dallas, TX

The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the DoubleTree by Hilton Hotel Dallas Near the Galleria featuring Farrukh T. Awan, MD from University of Texas Southwestern Medical Center. Find out more information and register here. 

The Leukemia & Lymphoma Society Meetings

Leukemia and Lymphoma Society – Tucker – Family Support Group – March 3 @ 7:00 pm – 9:00 pm

The CLL Information & Support Group of Rockland County NY – March 5 @ 7:00 pm

Tuesday, March 3, 2020 from 6:00 PM to 8:00 PM in Claymont, DE

LLS invites you to attend the Patient Education Program: Living Well with CLL: diagnosis, treatment and support held at The Waterfall, Claymont, DE. This event is free but registration is required. Find out more information and register here .

Saturday, March 14, 2020 from 9:00 AM to 3:00 PM in Anaheim, CA

LLS invites you to attend the Southern California Blood Cancer Conference being held at the Anaheim Marriott. This event is free but registration is required. Find out more information and register here .

Wednesday, March 25, 2020 from 5:30 PM to 8:00 PM in Rochester, NY

LLS invites you to attend the Patient Education Program: Living Well with CLL: diagnosis, treatment and support with speaker Clive S. Zent, MD, University of Rochester Medical Center. This event is free but registration is required. Find out more information and register here .

Hematologic Malignancies Meetings

Great Debates & Updates in Hematologic Malignancies is a 2-day, debate-style conference series, where thought leaders take opposing sides on clinical topics currently disrupting the practice of hematology and oncology. The meeting takes place in LA, Chicago and NYC this spring. Get $50 off with code “ENDORSER”: www.hemeoncologydebates.com