May 26, 2020
Dear Friends and Supporters of the CLL Society,
CLL Society COVID-19 Virtual Community Meeting
Our experts are back for Round Two! Answers to your questions! Please join us for our second CLL Society COVID-19 Virtual Community Meeting on Friday, April 3, 2020 at 11:00a.m. PT / 12:00p.m. MT/ 1:00p.m. CT/ 2:00p.m. ET.
CLL patients and caregivers will be able to engage in a question-and-answer online format with a panel of CLL experts, to discuss issues around COVID-19 specific to CLL patients. Last week’s meeting provided much needed information and advice and this Friday we will be updating the latest research and answering more questions.
Please see additional information and registration here .
New this week!
This week we’re publishing our first quarter issue of The CLL Society Tribune . So much great information; look for it in your inbox on Thursday!
At ASH 2019 Dr. Chaitra Ujjani discusses real world prescribing for CLL and why expert care is so critical . Not in the care of a CLL Expert? The CLL Society’s Expert Access Program can provide you with a FREE online HIPPA-compliant 2nd opinion. Apply here!
Dr. Koffman wrote this op-ed piece on getting coverage for CAR-T therapy so others could see the same benefits that he saw. “Seems that I am always arguing with insurance providers for myself or others.” See: How Medicare Is Limiting Cancer Care for Seniors .
Dr. Leclair answers your question on disinfectants for COVID-19 in this Ask the Expert post . We welcome your questions.
Patient and Caregiver Educational Forum Updates
All April and May Patient and Careigver Educational Forums have been postponed due to the threat of coronavirus.
Visit our website for the most up-to-date information on all CLL Society Patient and Caregiver Educational Forums.
Test Before Treat™
Stories from our readers highlight the importance of proper prognostic testing. Read here . Pick up a free bright red Test Before Treat™ reminder bracelet at our 2020 Patient Educational Forums. Tell us how testing before treatment, or lack thereof, influenced your CLL management at support@cllsociety.org .
Our CLL Experts Will See You Online!
Would you like a second look at your CLL? A generous grant funds our Expert Access Program, allowing you to see a world-renowned CLL physician- at no cost- for a second opinion, using our easy online platform . This program is open to all U.S. patients with a CLL diagnosis, and you are welcome to apply here. If you have used the program before, you may reapply if you need new clinical advice.
CLL Society Support Group Meetings Coming Up!
CLL Society Support Group meetings are moving to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in the link to the specific location below. Once it is safe again, we will resume in person meetings.
San Diego CLL Society Support and Education Meeting – April 1 @ 4:00 pm
Montreal CLL/SLL Support Group – Groupe de soutien de la LLC de Montréal – April 8 @ 6:00 pm
Houston-area CLL Support Group – April 11 @ 10:00 am
Central Massachusetts CLL Support Group – April 11 @ 12:30 pm
This meeting is held on-demand, so please email centralmass.cll.group@gmail.com if you are interested in attending.
Orlando CLL Support Grou p – April 11 @ 2:00 pm
Philadelphia CLL Patient Support Group – April 11 @ 2:00 pm
Atlanta Metro CLL Support Group – April 12 @ 3:00 pm
The Orange County CLL Support Group – April 14 @ 7:00 pm
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.
Virtual Events
April 9 and April 30, 2020 from 4:00 – 5:00 PM EDT (Two-Part Series)
Join CancerCare Connect® Education Workshop Series for people living with chronic lymphocytic leukemia, their families, partners, caregivers, friends and health care professionals. Patricia Koffman, Co-founder and Executive Director of CLL Society will be speaking. Listen to these workshops over the telephone or connect to our webcasts online. Find out more information and register here for each event here .
Lymphoma Research Foundation Meetings
Please be advised that all of their Ask the Doctor programs have been postponed due to the threat of coronavirus. Visit the LRF site for more information.
The Leukemia & Lymphoma Society Meetings
Please be advised that all of their Living Well with CLL programs have been postponed through May 15th. Visit LLS.org for more information.
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