May 26, 2020
CLL Society COVID-19 Virtual Community Meeting
Please join us for our third CLL Society COVID-19 Virtual Community Meeting on Friday, April 17, 2020 at 11 AM PT / 12 PM MT/ 1 PM CT/ 2 PM ET; we are bringing an infectious disease and west coast perspective to our expert panel. Please see additional information and registration here.
CLL Society Webinar
Please join us for a CLL Society Webinar, Just Diagnosed: What Do I Need to Know? on Tuesday, April 28, 2020 at 10 AM PT / 11 AM MT/ 12 PM CT/ 1 PM ET. Find out everything you need to know, from A – Z from Dr. Neil Kay of the Mayo Clinic for those newly diagnosed with CLL, including what to watch out for, the prognostic testing you need, and how to stay healthy. Please see additional information and register here.
Hello, Readers.
Smart Patients Get Smart Care™ has always been CLL Society’s byline, and now is a good time to remind ourselves that there is smart rationale behind the old common sense admonitions that keep us healthy (cover your cough or sneeze, handwashing, etc.) and new admonitions that come with specialized “gear” (wear a mask and gloves… use disinfectant and hand sanitizer, etc.) and that that peculiar “social distancing” instruction are all aimed at helping us safely navigate our daily lives as COVID-19 continues to threaten.
Smile, you’re on Amazon
We bet that you are shopping more from home. If you are using Amazon for deliveries, here is a free, painless way to help the CLL Society. Sign up for Amazon Smile. It costs nothing to designate the CLL Society as your charity of choice and they will donate a portion of your purchase to us. Simply…
- Visit smile.amazon.com.
- Sign in with your Amazon.com credentials.
- Choose CLL Society to receive donations
- Select CLL Society as your charity
Please take a look at Dr. Koffman’s 2020 Q1 Tribune article “Did You Know/ COVID-19” as we settle into new individual routines. How will our collective efforts in taking care of ourselves effect massive influence on deflating the spread of COVID-19? Read the article to remind yourself of the rationale. Heed the advice and become a great team player.
Also, don’t miss Dr. David Lefkowitz’ engaging story “How I got CLL and wound up in Chicago” in which he says goodbye to Watch and Wait, carefully weighs treatment options, and gets to go skiing again.
Expert Access is still open.
No mask! No gloves! No social distancing!
Just a Free, online Expert 2nd Opinion from a world-class CLL Expert physician in a HIPPA-compliant online consultation!
Join us as our Support Groups transition to meeting online. Expect an invitation from your Support Group leader soon.
COVID-19 has not derailed the CLL Society.
Don’t let it derail you.
We are all in this together.
Smart Patients Get Smart Care™
Patricia Koffman, Executive Director
CLL Society
COVID-19 and CLL: Frequently Asked Questions
ASH, the preeminent American professional organization of hematologists published a FAQ for doctors treating CLL patient during the pandemic.
CLL Treatment Decision Tool
The CLL Society worked with Clinical Care Options to put together some helpful patient materials including this basic CLL treatment decision tool to get you thinking about what options to discuss with your doctors.
Patient and Caregiver Educational Forum Updates
All Patient and Caregiver Educational Forums have been postponed due to the threat of coronavirus.
Visit our website for the most up-to-date information on all CLL Society Patient and Caregiver Educational Forums.
Test Before Treat™
Stories from our readers highlight the importance of proper prognostic testing. Read here. Request a free bright red Test Before Treat™ reminder bracelet. Tell us how testing before treatment, or lack thereof, influenced your CLL management at support@cllsociety.org.
CLL Society Support Group Meetings Coming Up!
CLL Society Support Group meetings are moving to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in the link to the specific location below. Once it is safe again, we will resume in-person meetings.
The Orange County CLL Support Group – April 14 @ 7:00 pm
Portland CLL Support Group – April 15 @ 6:00 pm
Milwaukee CLL Support Group – April 16 @ 6:00 pm
Twin Cities CLL Support Group – April 16 @ 7:00 pm
New Jersey CLL Patient Support Group – April 16 @ 7:00 pm
Western North Carolina CLL Patient Support Group – April 18 @ 10:00 am
City of Hope CLL Support Group – April 18 @ 10:00 am
Central Florida CLL Support Group – April 18 @ 10:30 am
West LA CLL Support Group – April 18 @ 11:00 am
Oberlin, OH, CLL Patient Support Group – April 18 @ 1:00 pm
Washington DC-area CLL Patient Support Group – April 18 @ 3:00 pm
New York City CLL Support Group – April 19 @ 3:00 pm
DFW – Dallas Area CLL Patient Support Group – April 19 @ 3:00 pm
San Francisco area CLL Patient Support Group – April 19 @ 4:00 pm
Chicago CLL Support Group – April 21 @ 7:00 pm
Rochester NY CLL Support Group – April 22 @ 7:00 pm
Nashville CLL Patient Support Group – April 25 @ 12:00 pm
Boston CLL Patient Support Group – April 25 @ 1:00 pm
Northeast Ohio CLL Patient Support Group – April 28 @ 7:00 pm
New Orleans and Surrounding Areas CLL Support Group – April 29 @ 6:30 pm
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.
Virtual Events
April 30, 2020 from 4:00 – 5:00 PM EDT
Join CancerCare Connect® Education Workshop Series for people living with chronic lymphocytic leukemia, their families, partners, caregivers, friends and health care professionals. Patricia Koffman, Co-founder and Executive Director of CLL Society will be speaking, along with featuring Drs. Jennifer R. Brown and Mazyar Shadman, and Social Worker Carolyn Messner. Listen to this workshop over the telephone or connect to our webcasts online. Find out more information and register here.
Lymphoma Research Foundation Meetings
Please be advised that all of their Ask the Doctor programs have been postponed due to the threat of coronavirus. Visit the LRF site for more information.
The Leukemia & Lymphoma Society Meetings
Please be advised that all of their Living Well with CLL programs have been postponed through May 15th. Visit LLS.org for more information.
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