May 26, 2020
Dear Friends and Supporters of the CLL Society,
CLL Society COVID-19 Virtual Community Meeting
Please join us for our third CLL Society COVID-19 Virtual Community Meeting on Friday, April 17, 2020 at 11 AM PT / 12 PM MT/ 1 PM CT/ 2 PM ET. Please see additional information and registration here.
CLL Society Webinar
Please join us for a CLL Society Webinar, Just Diagnosed: What Do I Need to Know? on Tuesday, April 28, 2020 at 10 AM PT / 11 AM MT/ 12 PM CT/ 1 PM ET. Find out everything you need to know, from A – Z from Dr. Neil Kay of the Mayo Clinic for those newly diagnosed with CLL, including what to watch out for, the prognostic testing you need, and how to stay healthy. Please see additional information and register here.
Dear Friends and Supporters of the CLL Society,
Grow your CLL/ COVID-19 learning here! Our IT man at the controls, Brad Hedrick, has edited and archived the CLL Society’s COVID-19 Virtual Community Meetings Parts I & II, featuring Drs. Anthony Mato, Danielle M. Brander and Brian Koffman, Lab Scientist Dr. Susan J. Leclair and Pharmacist Tom Henry who answered your compelling COVID-19 questions live in the last week and a half. It doesn’t get newer than that! Find them here:
COVID-19 will pass. Be in the “ready” position when “normal” returns. What better way to learn about helping ourselves than by reading how our fellow CLL patients have done it? Check out the following resources in our 2020 Q1 Tribune:
- Joe A. shared the very useful health history format he creates and always “takes to the doctor”! Check it out here. Take yours to the doctor; your doctor wants to know.
- Also, check out “Ask the Experts”. Your questions answered by our people in the know!
- Learn what those great helpers known as “patient navigators” do by reading Deb Kirkland’s article here.
LLS is offering $250 financial aid to eligible blood cancer patients during the COVID-19 pandemic. There is no income criteria and patients do not need to have a COVID-19 diagnosis.Please see more information here including how to apply.
And lastly, I will be joining CancerCare’s April 9 webinar event Part I: Update on Chronic Lymphocytic Leukemia (CLL) Thursday, April 9, 2020 from 4:00 to 5:00 PM Eastern Time featuring Drs. Adam Kittai, Deb Stephens, Lindsey Roeker and Social Worker Carolyn Messner. Tune in by registering here.
The CLL Society is here to help you navigate the universe of CLL!
Patricia Koffman, Executive Director
CLL Society
CLL Treatment Decision Tool
The CLL Society worked with Clinical Care Options to put together some helpful patient materials including this basic CLL treatment decision tool to get you thinking about what options to discuss with your doctors.
Patient and Caregiver Educational Forum Updates
All April and May Patient and Careigver Educational Forums have been postponed due to the threat of coronavirus.
Visit our website for the most up-to-date information on all CLL Society Patient and Caregiver Educational Forums.
CLL Society Support Group Meetings Coming Up!
CLL Society Support Group meetings are moving to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in the link to the specific location below. Once it is safe again, we will resume in-person meetings.
Montreal CLL/SLL Support Group – Groupe de soutien de la LLC de Montréal – April 8 @ 6:00 pm
Houston-area CLL Support Group – April 11 @ 10:00 am
Central Massachusetts CLL Support Group – April 11 @ 12:30 pm
This meeting is held on-demand, so please email centralmass.cll.group@gmail.com if you are interested in attending.
Orlando CLL Support Group – April 11 @ 2:00 pm
Philadelphia CLL Patient Support Group – April 11 @ 2:00 pm
Atlanta Metro CLL Support Group – April 12 @ 3:00 pm
The Orange County CLL Support Group – April 14 @ 7:00 pm
Portland CLL Support Group – April 15 @ 6:00 pm
Milwaukee CLL Support Group – April 16 @ 6:00 pm
Twin Cities CLL Support Group – April 16 @ 7:00 pm
New Jersey CLL Patient Support Group – April 16 @ 7:00 pm
Western North Carolina CLL Patient Support Group – April 18 @ 10:00 am
City of Hope CLL Support Group – April 18 @ 10:00 am
Central Florida CLL Support Group – April 18 @ 10:30 am
West LA CLL Support Group – April 18 @ 11:00 am
Oberlin, OH, CLL Patient Support Group – April 18 @ 1:00 pm
Washington DC-area CLL Patient Support Group – April 18 @ 3:00 pm
New York City CLL Support Group – April 19 @ 3:00 pm
DFW – Dallas Area CLL Patient Support Group – April 19 @ 3:00 pm
San Francisco area CLL Patient Support Group – April 19 @ 4:00 pm
Chicago CLL Support Group – April 21 @ 7:00 pm
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.
Virtual Events
April 9 and April 30, 2020 from 4:00 – 5:00 PM EDT (Two-Part Series)
Join CancerCare Connect® Education Workshop Series for people living with chronic lymphocytic leukemia, their families, partners, caregivers, friends and health care professionals. Patricia Koffman, Co-founder and Executive Director of CLL Society will be speaking, along with featuring Drs. Adam Kittai, Deb Stephens, Lindsey Roeker and Social Worker Carolyn Messner. Listen to these workshops over the telephone or connect to our webcasts online. Find out more information and register here for each event here.
Lymphoma Research Foundation Meetings
Please be advised that all of their Ask the Doctor programs have been postponed due to the threat of coronavirus. Visit the LRF site for more information.
The Leukemia & Lymphoma Society Meetings
Please be advised that all of their Living Well with CLL programs have been postponed through May 15th. Visit LLS.org for more information.
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