This is has been copied and pasted from bloodcancer.org.uk/support-…
“This information is relevant for you wherever you live in the UK. Across the UK, people who are identified by the NHS as being at a higher risk from coronavirus are being contacted directly by letter or text.
Adults and children with blood cancer may have a compromised immune system and therefore be at a higher risk of serious illness from coronavirus.
If any of the following apply to you, you should be contacted directly by the NHS about how to protect yourself:
- you currently have any type of blood cancer, whether you are having treatment or not (for remission, see below)
- you have had an autologous transplant (using your own stem cells) in the last year
- you have had an allogeneic transplant (using donor stem cells) in the last two years
- you are on immunosuppression medication after a transplant, you have GvHD, or you have ongoing immunodeficiency after a transplant
If you fall into any of these categories, you should be contacted directly by the NHS to tell you what measures you should take to protect yourself. This will include staying at home (shielding yourself) for 12 weeks.
The NHS is still identifying people who are at high risk and letters are still being sent out. Hospital teams and GPs are now being asked to check their patient lists and add anyone else they think needs a letter.”
This is from CLL support association’s website (the paragraph in capitols and in red is Dr. Koffman’s editing)
“People in the extremely vulnerable category, which covers CLL diagnosed patients, are asked to register here.
All CLL patients should receive a letter or text from the government stating that they are in the very vulnerable category.
What you should do if you have not received a letter or text
The government have been notifying at risk patients individually. However, this may take up to 2 weeks to reach you or may not reach you at all, if there isn’t an accurate record of your diagnosis.
If you have a diagnosis of CLL, but have not received a letter or text yet, you should still follow the shielding advice below. Please call your GP in the first instance, followed by your haematology team if the GP surgery are not able to help you.
Additionally, you should register yourself as high risk with your local support services (see “support” below), as this may trigger a letter to be sent to you.
Latest advice for all CLL patients:
We are aware that there has been some confusion over what CLL patients should be doing during the current viral pandemic. The following advice is important, and we would urge all CLL patients to follow the recommendations.
ALL CLL PATIENTS SHOULD NOW SHIELD THEMSELVES AGAINST THE POSSIBILITY OF CATCHING THE VIRUS. THIS APPLIES TO PATIENTS ON ‘WATCH AND WAIT’ AS WELL AS THOSE UNDERGOING TREATMENT OR POST-TREATMENT.